Orthopedics Archives - Nemours Blog

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Orthopedics

Chasing Dreams: Lizzy’s Story

For 15-year-old Elizabeth, softball has always been more than just a game—it’s a passion. As a high school varsity catcher and a dedicated travel ball player, Lizzy had her sights set on playing at the collegiate level. Then came a play that changed her season. During a game, Lizzy was catching when a runner crashed through her left arm, leaving her with a superior labrum anterior and posterior tear and a small rotator cuff tear. The injury sidelined her, keeping her from the sport she loved and limiting her daily activities. Lizzy was taken straight from the field to Nemours Children’s Hospital, Delaware where initial tests ruled out broken bones. However, with persistent pain and swelling, an MRI was scheduled the following week. The results revealed a labral tear, leading Lizzy to Dr. Alvin Su at Nemours Children’s Health, Deptford. From the start, Dr. Su and his team approached Lizzy’s […]

Finding Support: Frankie’s Story

At just 5 years old, Frankie is already proving that determination knows no bounds. Born with Arthrogryposis Multiplex Congenita (AMC), she has trouble with her joint moving the way it should. But with the expertise of the orthopedics team at Nemours Children’s Hospital, Delaware – including Dr. Jennifer Ty for upper extremities and Dr. Reid Nichols for lower extremities – Frankie has gained strength, confidence, and the tools she needs to thrive. During her mother, Lindsay’s, 11-week ultrasound, doctors noticed an unusual positioning of Frankie’s arms. This was a moment that changed everything for Lindsay and her family. “The rest of the day is a blur,” Lindsay shares. “We started genetic testing, but there were no solid answers. It was very overwhelming.” Uncertainty followed Lindsay and her family throughout the pregnancy, with no definitive diagnosis until Frankie’s arrival. But one pivotal meeting at 36 weeks helped to ease some of […]

Limb Differences Awareness Month: Taylor’s Story

For 10-year-old Taylor, every step of her journey has been guided by determination, expert care, and a team that feels more like family. Diagnosed at birth with fibular hemimelia, proximal femoral focal deficiency (PFFD), clubfoot, and leg length discrepancy, she has faced challenges with mobility from an early age. But with the right medical team by her side, Taylor is making incredible strides toward walking on two evenly balanced feet. Taylor’s family had long placed their trust in Dr. Shawn Standard, a highly respected specialist in limb lengthening and reconstruction. So when Dr. Standard moved his practice to Nemours Children’s Hospital, Florida, in fall 2024, Taylor’s family didn’t hesitate to follow. Under the care of Dr. Standard, Taylor has undergone a series of treatments designed to improve her mobility and function, including super ankle surgery, external and internal fixators for limb lengthening, ankle fusion, and the placement of 8 plates. […]

Limb Differences Awareness Month: Zohan’s Story

When Zohan was born, his parents were overjoyed to welcome their little boy into the world. But shortly after his birth, doctors noticed differences in his leg length and foot shape. After further testing, they diagnosed Zohan with fibular hemimelia, a condition where the fibula bone in the lower leg is missing or underdeveloped. From an early age, Zohan adapted to his condition, often running and walking on his toes. But as he grew, he faced challenges—difficulty wearing standard shoes, fatigue, and limitations in certain activities with his peers. His parents, determined to find the best care for him, were introduced to Nemours Children’s Hospital, Florida through their primary care provider. Their own research confirmed Nemours Children’s reputation for advanced limb reconstruction, and they knew they had found the right place. From their first visit, Zohan’s family felt reassured by Dr. Jason Malone, Dr. Shawn Standard, and the entire care […]

It Takes A Village: Gabriella’s Story

In October 2016, three-year-old Gabriella’s and her family’s world changed in an instant. She was diagnosed with rhabdomyosarcoma, a type of cancer that affects soft tissue. For her parents, Melissa and Shawn, time seemed to stand still. “So many emotions to describe that minute and the minutes, days, hours, weeks, months, and years since…” Melissa shares. But as they look back, their focus is on gratitude—on the people who stood beside them, the care that lifted them up, and the hope that carried them forward. Gabriella’s journey began under the care of Dr. Thacker, orthopedic surgeon at Nemours Children’s Hospital, Delaware. “We remember the words he spoke to us,” Melissa recalled. “But more importantly, we remember that his tone and demeanor were filled with sympathy, concern, and hope.” From the very beginning, Dr. Thacker was more than a physician—he was a constant source of support. Through chemotherapy, amputation, infections, and […]

From Trauma to Triumph: Briar’s Story

10-year-old Briar is no stranger to adventure. An active and energetic boy, he loved riding his mini bike—until a life-changing accident on September 18, 2024, left him with serious injuries. While riding, Briar was hit by a car, suffering fractures to his leg, both hands, clavicle, and skull, as well as trauma to his leg and chest. He was stabilized at the scene and airlifted to Nemours Children’s Hospital, Delaware, where a team of experts was ready to provide the care he needed. Briar’s injuries required immediate attention. Upon arrival at Nemours Children’s, he was rushed into surgery to repair his leg and chest. His care team, including Dr. Duke (Trauma surgery), Dr. Trionfo (Orthopedic surgery), Bernadette Fulweiler, APN (Wound Care), and Dr. Haas (Rehab Medicine), worked together to ensure he had the best possible outcome. Katie, Briar’s mom, recalls the overwhelming emotions of that day. “When we landed at Nemours, I […]

Cerebral Palsy (CP) Q&A: Declan

Raising a child with cerebral palsy (CP) comes with unique challenges and triumphs. In this Q&A, Declan’s mom, Kianna, shares her family’s journey—from navigating his diagnosis to finding the right care team at Nemours Children’s Hospital, Delaware. She reflects on the impact of CP on their daily lives, the importance of expert support, and how Dr. Shrader and the CP team have given them hope for Declan’s future. What is the most challenging part of the day for Declan? Declan’s biggest day-to-day challenge is working around his mind-body interactions. He is a very active kid and loves to play games at recess with his friends, but his legs don’t always cooperate. He has always been able to find a way to adjust, but his competitive spirit means he gets frustrated with the limitations CP places on him. What is Declan’s favorite part of the day? Declan’s favorite part of the […]

Cerebral Palsy Awareness Month: Rhy’lee’s Story

When Latoya welcomed her daughter, Rhy’lee, into the world, she had no idea how much resilience her little girl would have. Diagnosed at birth with hypoxic-ischemic encephalopathy (HIE), Rhy’lee spent her first 45 days in the hospital, relying on medical equipment to survive. Over time, her challenges became clearer—cerebral palsy, lung issues, and a need for a G-tube. For years, Rhy’lee faced constant hospital stays, battling lung complications that made life uncomfortable for both her and her family. “She was in and out of the hospital back-to-back,” Latoya recalls. “She was so uncomfortable.” It wasn’t until Rhy’lee was 5 that her parents, Latoya and Devon, were introduced to Nemours Children’s Hospital, Florida. A medical complex in downtown Orlando connected her with Dr. Aga Lewelt, and soon, Dr. Jason Malone and Dr. Alec Stall joined Rhy’lee’s care team. From that moment, everything changed. At Nemours, Rhy’lee’s family found more than expert […]

Cerebral Palsy Awareness Month: Logan’s Story

When Logan was born at just 31 weeks, his parents knew his journey would be anything but typical. After a complicated pregnancy and an early arrival, Logan faced significant medical challenges from the very start. Diagnosed with Periventricular Leukomalacia (PVL) and later with Cerebral Palsy and Autism, his early years were filled with therapies, surgeries, and specialists as his family sought the best possible care. Melissa, Logan’s mom, was determined to give her son every opportunity to thrive. From traveling to St. Louis for eye surgery and Selective Dorsal Rhizotomy (SDR) to consulting with a CP specialist in Texas, their family left no stone unturned. But when Logan was 8 years old and they were faced with the decision of hip surgery, their search led them to Nemours Children’s Hospital, Delaware, and Dr. Wade Shrader. The decision to pursue an osteotomy was not an easy one. “We consulted with numerous […]

Celebrating Rare Disease Day: Mia’s Story

Six-year-old Mia is a vibrant, outgoing little girl who lights up every room she enters. Born with several rare and complex medical conditions, Mia has already undergone more surgeries than many will face in a lifetime. Her resilience, boundless energy, love for singing and dancing, and dreams of becoming a nurse (or the next Taylor Swift!) inspire everyone around her. Mia’s medical journey began the day she was born, bringing with it a unique set of challenges. Diagnosed with Pierre Robin Sequence, complete tracheal rings, infantile scoliosis, hip dysplasia, ulnar dysplasia, an ectopic pelvic kidney, and clubfeet, Mia quickly showed she was ready to tackle whatever came her way. “Mia was immediately transported to Nemours Children’s Hospital, Delaware from our local hospital right after she was born,” shares her mother, Janelle. “She was in the NICU for 65 days. I drove back and forth, from Wildwood NJ to Wilmington DE, […]

New Beginnings: Brooke’s Story

Brooke knows firsthand the challenges of living with back pain. As a dedicated gymnast, she had always been active and driven, but last fall, her world shifted when lingering pain from a back injury turned into something much more debilitating. “My back pain heavily influenced my everyday life,” Brooke shared. “I had to quit gymnastics and was in pain all the time. I couldn’t go an hour without some sort of pain or ache throughout my back.” The search for answers was anything but easy. From August to November, Brooke and her family visited multiple doctors, only to leave each appointment without a diagnosis. Their frustration continued until September, when they found Dr. Shah at Nemours Children’s Hospital, Delaware. “He immediately knew what was wrong and how to address it,” shares Brooke. “No other doctor had been able to at that point.” Dr. Shah diagnosed Brooke with spondylolysis, a condition […]

Nello’s Story (In Mom’s Words)

On the second day after Nello’s birth, a doctor, in the hospital, initially diagnosed him with hemihypertrophy. However, due to additional side effects associated with the condition, we understood that further testing would be necessary to confirm and fully understand his diagnosis. Prior to receiving treatment at Nemours Children’s Hospital, Delaware, we found ourselves frequently visiting doctors to rule out potential diagnoses and ultimately determine the full scope of his medical condition. We discovered Nemours Children’s because someone recommended Dr. Thacker, an orthopedic doctor, and we made an appointment immediately. For 14 years, Dr. Thacker has been our trusted physician. His charismatic personality, exceptional bedside manner, and genuine empathy create a uniquely comforting patient experience. During appointments, I never feel rushed; instead, he makes me feel like the most important patient of the day. Our first visit to Nemours immediately impressed us with its efficient and organized environment. The clinicians […]

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