Orthopedics Archives - Nemours Blog | Expert Health and Wellness Guidance for Parents

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Orthopedics

Back on the Ice: Jeffrey’s Story

Diagnosed with hemihypertrophy and leg length discrepancy at just 9 months old, Jeffrey has undergone a complex medical journey, spanning over a decade. His family chose Nemours Children’s Hospital, Delaware after researching top children’s hospitals near their home in Lehigh Valley, PA. His family was particularly drawn to Dr. Reid Nichols, who would become Jeffrey’s doctor for the next 11 years. Throughout his life, Jeffrey’s treatments have been multifaceted and challenging. Jeffrey underwent several procedures, including an iliotibial fasciotomy/tenotomy, femur shaft osteotomy, and the implantation of a Precice lengthening device, as well as hemiephysiodesis of the distal femur. These interventions were crucial in addressing his leg length discrepancy and associated complications. His mother Amber shares, “We are blessed that Dr. Nichols has been his doctor for 11 years and giving us the best treatment. Her upbeat outlook and confidence in her work gave us the motivation we needed to continue […]

Independence and Confidence: Braulin’s Story

Braulin’s family found out about their son’s diagnosis during Gissette’s pregnancy. Gissette noticed that her local doctor was sending her to do more sonograms and measurements than she had for her previous pregnancies, making Gissette nervous. It was during this time that her care team informed her that Braulin was diagnosed with dwarfism. After receiving the diagnosis, Gissette decided to explore new care options with experts that specialized in dwarfism. “In my country, the Dominican Republic, there wasn’t much information about how to treat or care for a child with dwarfism,” shares Gissette. “I had a lot of questions but no answers. This is when my journey of looking for answers on the internet started.” Through her research, Gissette was able to connect with other parents navigating dwarfism and Little People of America. Once Braulin was born, Gissette took several trips to the United States with Braulin to receive specialized […]

A Smooth Recovery: Karlee’s Story

12-year-old Karlee was riding her bike with her brother and cousin when a sudden mishap sent her tumbling to the ground, her left wrist bearing the brunt of the fall. The impact was immediate, and the pain was intense. “When I fell, I landed on my left wrist and felt a sharp pain in my arm,” Karlee recalls. After the accident, a trusted family member recommended they see Dr. John Lovejoy at Nemours Children’s Hospital, Florida. “All of my doctors and nurses at Nemours were really nice and made sure I was comfortable,” Karlee shares. From the moment she arrived, the team at Nemours took a compassionate approach, ensuring that Karlee felt at ease and understood every step of the process. “Dr. Lovejoy helped me understand what bones I broke and how they planned to fix them,” Karlee says. The detailed breakdown of her injuries and the treatment plan provided […]

A Bright Future: Peter’s Story

Peter, a child with Down syndrome adopted from Hong Kong at the age of 3, has faced numerous health challenges throughout his life. His journey, including multiple surgeries and comprehensive care, is a testament to the importance of dedicated medical support. Peter’s health issues were first identified when his parents noticed he wasn’t thriving. After consulting several specialists, a podiatrist with training at Nemours Children’s referred them to Nemours Children’s Health. After several tests, Peter received a critical diagnosis: his C1-C2 vertebrae were not fused, posing a significant risk to his spinal cord. In September 2017, Peter underwent a lifesaving C1-C2 fusion surgery performed by Dr. William Mackenzie and Dr. Jeffrey Campbell at Nemours. Following the surgery, Peter showed remarkable improvements in various areas, including potty training, communication, and education. However, his journey was far from over as Peter was still experiencing complications with his foot. Further examinations with Dr. […]

Dancing Through Recovery: Sayuri’s Story

During an annual scoliosis screening at Sayuri’s middle school, one of the nurses noticed something unusual about her back. “I remember the nurse checking my back and pointing out that I twisted more to one side, and there was asymmetry with one side rising higher than the other,” Sayuri shares. “She told me that the case is most likely mild or moderate, as the condition was common and those of a higher severity were rare. I was sent home with a letter to my parents to get my back checked.” Sayuri’s initial X-rays confirmed the nurse’s suspicions. “When I got my x-rays done, I was told that I had moderate scoliosis, with a recommendation for a back brace to keep the curve from progressing,” says Sayuri. The diagnosis of adolescent idiopathic scoliosis, characterized by a severe S curve, meant that her life would require some adjustments. As Sayuri grew older, […]

Associate Highlight: Erin Baker, PT, DPT, ATP, CPST

As a young athlete, Erin had faced her share of injuries, requiring her to go through physical therapy (PT) several times. These transformative experiences that ignited a passion within her. “The care I received sparked a desire to help others regain their ability to participate in the sports and activities they love,” Erin reflects. Initially, she envisioned a career focused on pediatric rehabilitation, driven by her understanding of the challenges young athletes face. However, during her physical therapy schooling, a neurology rotation at the MS Comprehensive Care Center exposed her to world of neurologic rehabilitation.” I was drawn to the complexity and challenge of working with the neurologic population and discovered a passion for adaptive equipment,” says Erin. After graduating, Erin gained valuable experience in both acute care and outpatient settings. Her skills and knowledge grew with each patient she treated. A few years into her career, she was encouraged […]

Back on the Mat: Alexa’s Story

Alexa, then 12 years old, had always been an active child, participating in various sports such as Jiu Jitsu. However, a previous knee injury that seemed minor at first, suddenly got worse. What started as a slight discomfort during physical activities escalated into persistent pain that made it difficult for her to participate in sports. As the pain began to increase, Alexa was referred to Nemours Children’s Sports Medicine Orthopedic Surgeon, Dr. Alvin Su. Under the care of Dr. Su and the team at Nemours Children’s Hospital, Delaware, Alexa was diagnosed with osteochondral defect (OCD). OCD is a condition where there is damage to the cartilage and the bone beneath it within a joint. This type of injury is commonly found in the knee, and it can be particularly debilitating for young athletes. “This condition didn’t allow me to return to sports and other strenuous activities, like Jiu Jitsu,” shares Alexa. After […]

Navigating Clubfoot: Sofia’s Story

For Sofia’s family, a routine pregnancy check-up took a surprising turn when an ultrasound revealed that Sofia would be born with a condition known as clubfoot. “As an infant, her feet were going inward and it was heartbreaking to see,” Sofia’s mom shares. Determined to give her daughter the best possible care, Sofia’s mom turned to the internet, where she discovered Dr. John Lovejoy and Nemours Children’s Hospital, Florida. The diagnosis of clubfoot had been unexpected, but the prospect of expert care and a promising treatment plan offered a glimmer of light. It was at Nemours Children’s Hospital Florida that they met Dr. Lovejoy, Chair of Orthopedics and Sports Medicine. Dr. Lovejoy recommended Sofia be started with casting using the Ponseti method. This treatment involved a series of castings, which were crucial for maintaining the corrected position of her foot. The process required regular weekly visits to Nemours as a […]

The Path to Wellness: Blake’s Story

When Blake was just 2 years old, her mom, Kimberly, noticed she was experiencing back pain. “Blake was crying in her car seat and reaching for her back,” Kimberly recalls. Concerned, they decided to seek medical help. An MRI of Blake’s spine revealed a Chiari malformation and two Tarlov cysts, conditions that would significantly impact her life. As Blake continued to grow, simple activities like sitting or standing were sources of pain, making it difficult for her to enjoy the things most children take for granted. At school, she had to use a special chair and cushion to alleviate some of the discomfort. Family life was also affected, as long car trips were out of the question due to the intense pain Blake experienced. Now 13 years old, Blake has been a Nemours Children’s Hospital, Delaware patient nearly all her life, receiving care from the orthopedics, neurology, and neurosurgery departments. […]

In Good Hands: Lucy’s Story

When Michelle learned she was pregnant, she was referred to Nemours Children’s Hospital, Florida for high-risk prenatal care. From the very beginning, she felt supported by her care team. So, when her daughter, Lucy, was diagnosed with hip dysplasia at 6 weeks old, there was no hesitation about where to turn. Because Lucy was breech throughout the entire pregnancy, her pediatrician took extra precautions after birth to check for hip dysplasia. “Her pediatrician wanted to check if she could possibly have hip dysplasia, and thank god she did because we were able to treat her on time,” shares Michelle. “We were so grateful it was diagnosed so early where we as parents did not notice, and she did not feel affected by it as a newborn.” The family’s relationship with Nemours Children’s came full circle when they decided to bring Lucy in for treatment. “The treatment for myself was so […]

Jalen’s Journey with Hip Dysplasia (In His Mom’s Words)

Jalen has been a miracle since the beginning. We struggled with infertility and experienced four miscarriages over five years before he came into our lives. Each pregnancy took nearly a year to achieve, and each time, we lost the baby. During my pregnancy with Jalen, I was constantly terrified of miscarrying and prayed every day for his safe arrival. We had a C-Section scheduled for November 1, 2013, because Jalen was in a breech position. The moment I saw him and heard his cry, I felt an immense relief. He was finally here, safe and sound, and I could breathe again. That relief lasted for about a minute before I felt the fear creep back in again. I watched his newborn examination, I remember noticing they didn’t bring him over to me as quickly as I expected. The providers were focusing on his legs, and more and more of them […]

Excellent Care is Out There: Charlotte’s Story

Before she was even born, Charlotte was diagnosed with Congenital Femoral Deficiency and Fibular Hemimelia, a rare condition that would shape her life in ways her family could never have anticipated. Congenital leg length discrepancies are when patients have legs that are different lengths. Femoral deficiency is characterized by a short or missing thighbone and fibular hemimelia by a short or missing fibula. “It was an incredibly emotional and uncertain time for us,” her mother, Melissa, recalls. The news was both a shock and a call to action. As soon as they received the diagnosis, her family was determined to understand the condition and find the best possible care for Charlotte. “We knew this would be a lifelong series of surgeries, rehabilitation, and specialized care,” her father, Brian, recalls. “There was a lot of anxiety and fear about what her future would look like and whether she would be able […]

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