Nemours Blog - Page 8 of 25 - Powered by Nemours Children's Health System

Overcoming Scoliosis- Alexis’ Spine Story

Contributed by Alexis. At the age of twelve when I hit puberty, my back started bothering me a lot. I made an appointment with my pediatrician, where I learned I was developing scoliosis. She referred me to Nemours Children’s Hospital, Delaware, where I met with pediatric orthopedic surgeon, Dr. Suken Shah for further examination. After an x-ray, we found that I had two curves measuring 22 and 23 degrees. A few months later, I received a brace to prevent my spine from getting worse. My scoliosis made my hips so off-balance that it affected my legs. I was also given a lift to wear in my shoe because my left leg was about an inch shorter than my right leg. I was supposed to wear the brace at least 18 hours a day, but I usually wore it for about 23 hours a day. I ended up wearing the brace […]

Speak Now for Kids- Family Advocacy Day

Nemours Children’s Health is proud to participate in the 2022 Children’s Hospital Association’s (CHA) Speak Now for Kids’ Family Advocacy Day. This annual event brings together pediatric patients, their families and the children’s hospitals that care for them to speak with our Congressional leaders about the unique needs of children and how children’s hospitals play a critical role in providing coordinated, specialized care for our youngest generation. This year, we are excited to bring two young champions and their families to meet virtually with our Delaware and Florida Congressional delegation members to share their inspiring stories.   David Smith*, 12 years old, Wilmington DE David started exhibiting challenging behavior at age 5. These behavioral issues became more intense over time. While he was excelling academically, he experienced strong emotional outbursts at school, which led to many trips to the principal’s office. In the beginning, school administrators believed he would outgrow […]

A Fighting Spirit- Emilee’s Story of Heart and Spine

If resilience had a name, it would be that of 12-year-old Emilee. She was born with a complex heart defect called single ventricle that required heart surgery when she was just 2 days old. Her fighting spirit endured through three more heart surgeries and several heart catheterizations. Her heart surgeon, Dr. Christian Pizarro, assisted by cardiac anesthesiologist, Dr. Ellen Spurrier, and their highly specialized team—cared for her–watching over Emilee day and night. It was a scary and unsettling time for her family, who stayed right by her side. Through it all, Emilee thrived. But her health challenges continued.  Emilee was diagnosed with scoliosis that progressed to the point that surgery was needed.  In January 2022, she underwent a spinal fusion, a major surgery for anyone, but especially risky for someone with a single ventricle heart defect. Pediatric spine surgeon, Dr. Peter Gabos, performed the complicated operation with Dr. Spurrier again […]

teenage girl refusing sandwich

Gluten could be at the root of your teen’s gastrointestinal problems. Here’s what to look for.

This article first appeared on Diarrhea. Abdominal pain. Bloating. Ugh!!! These annoying symptoms can occur in many gastrointestinal problems that teenagers experience. On social media, on the bleachers a school sports events, at doctors’ appointments, it seems like everywhere people are talking about gluten. So what exactly is gluten? Gluten is a group of proteins commonly found in wheat, barley, oats, and rye. It affects the dough quality of breads and is added to processed foods to improve texture, moisture, and flavor. When should a teenager go gluten-free?  When they are diagnosed with a problem caused by gluten. Celiac disease, wheat allergy, and gluten intolerance involve gluten, but are not one and the same. Celiac disease is an autoimmune disease where gluten triggers the body’s immune system, which normally makes antibodies to fight off harmful invaders like viruses or bacteria, to make antibodies against itself. These “autoantibodies” damage villi, […]

What to Do During the Baby Formula Shortage

You may have noticed a shortage of baby formula on store shelves these days. The COVID-19 pandemic has caused supply chain and staffing issues, and a recent recall of baby formula due to contaminated products from one factory has added to the problem. If you are formula feeding your baby, you may worry about how you will continue to feed your little one. Here are some tips on how to navigate the baby formula shortage. What to do: Talk to your baby’s doctor, who may have some sample cans of formula available. You can also call a local hospital, breast milk bank, or office of WIC (the federal Special Supplemental Nutrition Program for Women, Infants, and Children). Women’s shelters, food banks, and faith-based organizations might also be able to help. Shop around. Try other stores that you may not have visited in the past, especially smaller independent grocery stores, pharmacies, […]

The Star Wars Cardiac Jedi- Vincent’s Story

Contributed by Vincent’s mom Tamara. When my father died of a heart attack at the age of 39, I was only 4 years old. It was very hard on me and I always feared that I would have a heart problem or my kids would have one. Our pediatrician recommended that both my son and daughter be seen by a cardiologist to be sure that their hearts were healthy. She asked that I get my children cleared by the cardiologist, so of course; I called Nemours Children’s Health, since we’ve had previous appointments there. My daughter and son both had an EKG;  Dr. Steven Ritz, our Nemours pediatric cardiologist, said that something showed up on Vincent’s EKG and that he would need to have an ultrasound. Dr. Ritz went over his findings in detail with us. Vincent was diagnosed with Wolff-Parkinson-White (WPW) Syndrome, a condition in which he has an extra electrical […]

Patient surrounded by her care team

The Beat Goes On: Grace, a Heart Patient, Shares Her Story

Back in February of 2016, I started experiencing horrible palpitations, and decided one day to go get it to check out. I was immediately diagnosed with (WPW) -Wolff-Parkinson-White syndrome. After my first heart ablation, everything went smoothly. I was back to doing all the sports I loved like track and cheer! I was living life to the fullest. However, a couple of months later, I started to have the same palpitations, along with being super tired and getting dizzy. The doctor I originally went to had moved away, so my mom who is a nurse, did her research, and we decided to switch over to Nemours Children’s Health.  Seeing a cardiologist there, I had my second heart ablation in December 2016. I was 14 years old and have had two heart ablations! The surgery was quick, and I was told that everything looked good, they said. I recovered perfectly and […]

A Damaged Liver that Led to a Liver Transplant- Jeylainie’s Story

Jeylainie’s life as a normal 9-year-old changed abruptly in September 2021. Her mother, Keyla, noticed that Jeylainie’s skin was turning yellow and becoming jaundiced. Soon after, Jeylainie started complaining of a stomachache that would not stop. Her mother took her to a local children’s hospital, where she was admitted. Her doctors initially thought she had kidney stones, then did a biopsy to determine what was wrong. But Jeylainie’s health continued to deteriorate rapidly. After her doctors spoke with Nemours Children’s Solid Organ Transplant team, Jeylainie was transferred to Nemours Children’s Hospital, Delaware for more specialized care. Jeylainie’s diagnosis was hepatitis, an acute inflammation that causes damage like scarring to the liver. Since her liver was so damaged, she needed a liver transplant quickly. Keyla says, “It was crazy – Jeylainie is a healthy eater who loves her veggies, it was surprising to see her health go downhill so quickly.” While […]

Is My Child Gambling? Signs Parents Should Look Out For

Is My Child Gambling? Signs Parents Should Look Out For

Everyone is talking about “March Madness.” Many are tracking their brackets and bets closely. There is plenty of fun to be had cheering for our favorite basketball teams, but it’s also a good time to talk to your child about gambling. You may think this conversation can start when your child is old enough to step into a casino. But for many kids, gambling starts much earlier. Sports betting, lottery tickets, and card games often start in middle school. Some online games bring gambling right to kids’ phones and computers. And these days it’s hard to turn on the TV without seeing a commercial glamorizing the many new avenues for wagering. Here is some information to help you talk with your kids about gambling. What Is Online Gambling? Online gambling is any gambling done through the internet. Common types of online gambling include casino games (poker, slot machines) and sports […]

Ways You Can Support the People of Ukraine

Ways You Can Support the People of Ukraine

Showing kids how to turn empathy into helpful action, they learn they can make a difference. You and your children may be anxious about the war in Ukraine. It’s important to answer any questions your kids may have. But you can also turn your family’s empathy into meaningful action by finding ways to support the people of Ukraine. Exploring how to help and explaining that our country is supporting relief efforts can make it easier for children to process these tragic events. Here are a few ways that families can offer support: Donate to a Verified Charity Kids can feel more of a connection to aiding in relief efforts if they understand who they are helping and how. Families can read about the charities that are accepting donations and choose one together. Below are a few organizations that are specifically assisting Ukrainian children and families. UNICEF: This humanitarian organization works to […]

How to Avoid Putting Too Much Pressure on Kids

How to Avoid Putting Too Much Pressure on Kids

We all want our kids to succeed, to be happy, and for things to go smoothly. It’s hard to see our kids let down, or disappointed, but as we just saw in the Olympics, disappointment and let down happen to even the most talented of humans. Instead of protecting our kids from feeling frustrated, or failing, or being disappointed, we should be encouraging it! Learning how to navigate tough feelings, especially feelings we know will occur throughout their lives, is important for kids. And parents can help! Let Things Go Wrong As hard as it may be, the first step to helping kids learn what to do when things go wrong is — let things go wrong. These can be simple things like: not forcing them to practice a sport more when they have a game the next day not bringing the homework they forgot to school even if it […]

Page 8 of 25

Page 8 of 25

Page 8 of 25