Nemours Blog - Page 8 of 33 - Powered by Nemours Children's Health System

22q Awareness Day: Jason’s Story

Jason’s story began with a seemingly innocent complaint, ear pain. Concerned for her son, Andrea Salicia vividly remembers the moment she first suspected something was wrong with her son Jason. While feeding him, she noticed that he was twitching, and it didn’t appear to be normal newborn behavior. A few days later, in a terrifying incident, Jason began gasping for air during a feeding, followed by a more severe twitch. Panicked, Salicia rushed him to the Nemours Children’s Hospital, Florida emergency room. It was there that a nurse informed her that Jason’s “twitches” were actually seizures, prompting further investigation. This nurse also thought that he might have a condition called DiGeorge syndrome but didn’t want to say anything until it was confirmed. The medical team then performed a spinal tap and various tests, which led to a diagnosis of 22q11.2 deletion syndrome, also known as 22q or DiGeorge syndrome, at […]

Associate Highlight: Shawn and Tammy

Shawn and Tammy Rolquin are a remarkable couple who share a dedication to making a difference in the lives of children and families. Tammy, a Post-Anesthesia Care Unit (PACU) Registered Nurse, and Shawn, the Manager of the Critical Care Transport Team and Transfer Center, both work for Nemours Children’s Hospital, Florida. While they may have distinct roles within Nemours, the pair occasionally find their paths crossing. The surgical department where Tammy works overlooks the helicopter pad and ambulance bay, offering her an exciting viewing point. “When the timing is perfectly aligned for the both of us,” Tammy says, “I can watch Shawn take off or land in the helicopter. We get to exchange a quick wave and a smile. We are both usually quite busy, but this small occasional moment is very impactful and special for us.” Shawn and Tammy met in college through a mutual friend. “His truck broke […]

A Race to Remember: The Philadelphia Marathon

Nemours Children’s Health is the title sponsor for the Nemours Children’s Run as part of the 2023 Philadelphia Marathon Weekend on November 17-19. As part of our commitment to health and wellness, we recently raffled off five complimentary race bibs.  Tom Jones, Sarah Flynn, and Lauren Miller were our lucky winners of the Philadelphia Marathon Weekend race bib raffle! Get to know them with their cool stories below: Meet Tom Jones, Nemours Estate What does it mean to represent Nemours Children’s in this event?  I work over at Nemours Estate and just love my job. I get to work outside every day. It’s such a beautiful place, and I feel that I am a valued member of my team. I love the fact that Nemours is a sponsor at this race, I feel that these events are helping the community and are in line with our mission of well beyond medicine.  What is your favorite music to […]

Warning Signs: Gianna’s Leukemia

Join Gianna’s inspiring journey from a mysterious illness to a leukemia diagnosis, her tailored treatment at Nemours Children’s Hospital, Delaware.

Arianna’s Journey with Bilateral Retinoblastoma (In Mom’s Words)

Para leer este blog en español, haz clic aquí! It all began when Arianna was just one year old. We noticed that one of her eyes was red and had a strange white spot in her pupil. Worried, we took her to her pediatrician, who immediately sensed that something was not right. We were referred to an ophthalmologist and then to a hospital, where she was diagnosed with a large mass in her eye. This mass was pushing her eye outward, so an emergency surgery was performed that same day to remove it. The surgery was successful, or so we thought. However, a few days later, the pathology results delivered the most devastating news: the mass was malignant. It was cancer. Arianna began chemotherapy treatment, going through six exhausting sessions. After that, she was discharged, but unfortunately, proper follow-up was not done to evaluate her other eye. Three years later, […]

Celebrating Erin Baker: A Remarkable PT and Advocate for National Physical Therapy Month

This National Physical Therapy Month, we have the privilege of spotlighting Erin Baker, a Physical Therapis (PT) and Assistive Technology Practitioner (ATP) at Nemours Children’s Hospital, Florida. Amber Yampolsky, Nemours Children’s Rehab Manager, Erin’s co-worker, and one of Amber’s direct reports, shares her perspective on what makes Erin such an outstanding Nemours Children’s Physical Therapy team member. Erin and Amber’s journey began before their time at Nemours, back when they were acquaintances working at a different hospital in Central Florida. However, their professional paths converged when they both joined the rehabilitation department at Nemours Children’s Hospital, Florida. Erin’s journey at Nemours began before Amber’s. She arrived with a clear mission: to specialize in Assistive Technology practice within the rehab department. Shortly after, Amber came to Nemours, determined to make a mark in the field of pediatric inpatient rehabilitation. Erin’s dedication is second to none. She has not only specialized in Assistive Technology […]

An Unexpected Illness: Jason’s Story

Jason’s story began with a seemingly innocent complaint, ear pain. Concerned for her son, Andrea promptly scheduled an appointment with their Nemours Children’s Health primary care pediatrician, Dr. John Clore. Initially, the diagnosis appeared to be a mild outer ear infection. However, later that day Jason began vomiting consistently. The family returned to Dr. Clore’s office, who advised them to seek emergency care at our hospital. Little did they know that this visit would mark the start of a challenging journey. Jason was tested for various illnesses, including strep, flu, and COVID-19, but all the results came back negative. It wasn’t until they reached the emergency room at Nemours Children’s Hospital, Florida that the real diagnosis was discovered – strep A in Jason’s bloodstream. Jason developed a rare complication from his infection of severely increased intracranial pressure. This led to constant excruciating head pain and double vision. He was at significant […]

Just Keep Swimming: Braelynn’s Story

During Stephanie’s pregnancy, a routine ultrasound at 12 weeks revealed that Braelynn’s left leg was not developing as expected. Shortly after this discovery, the family was introduced to Dr. Louise Reid Nichols. Dr. Nichols delivered the diagnosis of Fibular Hemimelia (FH), a congenital condition affecting the development of the fibula bone in the leg. Stephanie’s doctors referred the family to Nemours Children’s Hospital, Delaware when she was just 20 weeks pregnant. From the moment they stepped through the doors, Nemours became more than just a hospital; it became a place of hope, compassion, and support. After several appointments with Nemours, Braelynn’s family learned that her left leg needed to be amputated. She would receive a prosthetic and attend physical and occupational therapy sessions. What stands out most about Braelynn’s journey at Nemours is the connection that was developed between Braelynn and her care team. “The Nemours Orthopedic Department has been […]

Jade’s Scoliosis Story

Jade has always been passionate about dance and yoga. One of her favorite hobbies is practicing yoga with her aunt. When Jade was 11 years old, her aunt noticed that her left rib was bulging out during one of their yoga stretches. This realization, along with Jade’s complaints of back and rib pain, raised concerns for her parents, especially since her mother was diagnosed with severe scoliosis at a young age. Based on her experience, Jade’s mom knew she had to act quickly so she immediately scheduled an appointment with their pediatrician to get a back check. At age 11, Jade was diagnosed with scoliosis and recommended to Nemours Children’s Health, Jacksonville. Jade and her family met with Anna Rambo, MD, an orthopedic surgeon at Nemours Children’s Health, Jacksonville. After their first appointment, they knew they made the right decision in choosing Nemours. They immediately loved everything about Dr. Rambo. […]

Olivia’s Amblyopia Journey

Follow Olivia’s inspiring journey through amblyopia treatment, where patching and glasses restored her vision to 20/20. Discover valuable insights into pediatric eye care and research at Nemours Children’s Health.

Page 8 of 33

Page 8 of 33

Page 8 of 33