When Brayden was born, he was premature and was having a hard time gaining weight. His family took him to weekly weight checks with little to no change taking place. After a change of pediatricians, they were told he had a heart murmur. Brayden and his family were referred to Nemours Children’s Hospital, Delaware for further evaluation with the cardiac team. Brayden was diagnosed with dilated cardiomyopathy, requiring the initiation of medication to observe his response. With additional testing, the diagnosis of Barth Syndrome was confirmed. Barth Syndrome is a rare condition that causes an enlarged and weakened heart, weakness in muscles, frequent infections, and more. Due to his inability to gain weight, a G-tube, otherwise known as a  Mickey button, was placed to provide extra calories and nutrition to Brayden which overnight feeds. Brayden received yearly cardiac catheterizations to monitor the function of his heart. In December 2014, when […]

Delaware students Maxine and Vivian Ruggerio aren’t immune to the allure of social media.  But they also believe that most teens are struggling to navigate the online world. From perfectly edited images to overtures from strangers, social media presents a minefield of challenging issues.  The sisters are working on an e-book to provide tips to teens who want to protect their mental health and personal safety while online. As they researched their book, they conducted a survey of peers, discovering that 100% of their respondents used social media. More than half said social media made them feel stressed or bad about themselves. And more than half felt that more controls are needed, such as added privacy or safety features.  Maxine and Vivian joined psychologists from Nemours Children’s Health, Delaware in a recent panel discussion on teen mental health and social media. Delaware Attorney General Kathy Jennings; Delaware State Rep. Krista […]

Everlee’s story begins with a diagnosis of hepatoblastoma, a rare form of liver cancer, at the age of 17 months. Her mother, Jenna, recalls the moment when she first noticed something amiss with her daughter’s health. “It was right around Christmas of 2022,” says Jenna. As first-time parents, Jenna and Jarod couldn’t shake the feeling that Everlee’s belly seemed larger than normal. Despite reassurances from pediatricians, inklings of concern persisted, especially when family members echoed their observations. “Something just seemed off,” says Jenna. “I was giving her a bath one day, and I laid her out on the towel and thought, ‘Oh my gosh, she just looks so bloated.’” Alarmed, Jenna wasted no time in seeking medical attention. She was able to get Everlee in to see her local pediatrician at their last appointment for the day on Friday, January 13th. The routine examination led to the discovery of a […]

Amid the beeping machines of the hospital, there exists a beacon of hope and joy in the form of our dedicated Child Life department. Julia Greco has been a Child Life specialist at Nemours Children’s Hospital, Delaware for the past two years. With her warm smile and gentle demeanor, Julia has made it her mission to ensure that even the youngest patients find comfort and happiness during their stay.  “It is so important to us that our patients don’t miss out on childhood experiences,” says Julia. “The child life department at Nemours Children’s Health is dedicated to providing patients and families free services and activities to make their lives as normal as possible despite their situation.” Julia received a bachelor’s degree in human development & family studies from Penn State and furthered her education in child life studies at Missouri State. She was drawn to this career path because of how special and unique […]

On this Doctors’ Day, Nemours Children’s Health spotlights one of its esteemed physicians, Dr. Richard H. Sandler. Dr. Sandler is a physician in the Gastroenterology department at Nemours Children’s Hospital, Florida. His journey to becoming a doctor was inspired by a love for science, problem-solving, and a deep-rooted desire to help people. After majoring in nuclear engineering in college, he took a detour to work for the US Senate Environment Subcommittee. Here, his passion for making an impact on people’s lives became evident. In 1975, the realization that medicine was the perfect fit set him on a path he remains grateful for every day. Recruited in 2011 to build the GI division and pediatrics department at the new Nemours Children’s Hospital, Florida, Dr. Sandler developed a connection with the institution and his colleagues. For him, the heart of Nemours lies in the caring, smart, hardworking, and devoted community of doctors […]

Nemours Children’s Health is proud to spotlight the diverse passions and remarkable journeys of our esteemed physicians. Among them is Dr. Darren Klawinski, a Pediatric Neuro-Oncologist based at Nemours Children’s Health, Jacksonville. Dr. Klawinski’s path to medicine was deeply personal. From a young age, his grandfather’s encouragement planted the seed of becoming a surgeon. However, fate had its own plans when, at 12 years old, Darren was diagnosed with medulloblastoma, a form of brain cancer. Enduring surgery, radiation therapy, and chemotherapy shaped his perspective, igniting a passion to provide hope and healing to others facing similar challenges. After completing his pediatric hematology/oncology fellowship with Nemours in Jacksonville, Dr. Klawinski found himself drawn back to the institution. “I loved my time there and loved living in Jacksonville,” he says. Following additional training in Pediatric Neuro-Oncology at Nationwide Children’s Hospital in Columbus, Ohio, the opportunity to return to Nemours presented itself, a […]