Nemours Children’s Health and the Elizabeth Dole Foundation are pleased to announce the national release of Caring for Children and Teens in Military Caregiving Families, a continuing education course to increase healthcare providers’ ability to understand and support the unique needs of children in military families. The three-part training is designed for primary, specialty, and behavioral health care providers and care team members who see children and teens from military and veteran caregiving families. The recommendations offered in the training were informed by more than 200 survey and focus group responses from parents and guardians of children and teens growing up in military caregiving homes as well as the experts featured in the presentation. The course is intended to provide a high-level overview. It is supplemented by a resource document with links for taking a deeper dive into topics addressed in the modules. The course is available via the continuing […]

Annika’s path to a cerebral palsy diagnosis began at a young age. Born prematurely at 29 weeks and five days, Annika’s mother, Jessica, noticed subtle differences in her development around six months. When Annika’s twin began reaching certain milestones, such as rolling over, ahead of her, Annika’s family became concerned. “That was my first clue that something was not exactly typical,” says Jessica. “I mentioned it to her local pediatrician; however, Annika did a lot of other things typical and well, so she didn’t seem worried. I just knew deep down that something was off, and asked if, based on her prematurity, she could qualify for early childhood physical therapy. Annika began her first physical therapy when she was 7 months old.” Jessica’s persistence led Annika to early intervention therapies, and when Annika was 11 months old, she asked that the pediatrician refer her to a local pediatric neurologist. Despite […]

Laurel’s path to a career in Child Life began during her childhood. At just 3 years old, she experienced the passing of her younger brother due to SIDS, setting the foundation for her comprehension of grief. “I think that experience planted an empathy seed within me,” says Laurel. “It’s really special how I am able to use my experiences to support families here at Nemours Children’s. I’m able to understand grief within a family dynamic, including the sibling perspective, and share my insights, along with my training, into its effects on daily life and a family’s ability to cope.” In fifth grade, Laurel encountered child life firsthand during a hospitalization for a urethral reimplantation. From preparation for surgery to post-operative support, she found peace in the playroom activities and therapeutic interventions facilitated by her Certified Child Life Specialists. It was during these years that she discovered the importance of psychosocial […]

Dillan’s hearing loss was discovered during a routine hearing scan, revealing that she was deaf in her left ear. While Dillan’s family had noticed some challenges with communicating before seeking treatment at Nemours Children’s Hospital, Florida, they were shocked to learn this news. Her family was very eager to find answers and solutions. Having been involved with the groundbreaking of Nemours Children’s Hospital, Florida 10 years ago, Dillan’s family was drawn to the comprehensive care provided under one roof. “Nemours provided seamless care. I love being able to communicate with her doctors in real time,” says Dillan’s mom. With the help of Dr. Morgan Wilcox, Dillan now has a hearing aid for her left ear, making an incredible difference in her hearing. “From the first day I met her, Dillan is always smiling and just has this contagious, feel-good attitude that you can’t help but smile and laugh along with […]

During Liane Rensing’s 20-week ultrasound, it was discovered that her baby, Mila, had a cleft lip. This diagnosis expanded when Mila was born with a right-sided incomplete unilateral cleft lip and a complete cleft palate. The first year of her life brought challenges to the Rensing family as they learned to navigate caring for Mila. “We learned how to feed and take care of her with feeding devices like special nipples and bottles,” explains Liane. “We had to figure out how to tape specifically designed appliances to Mila’s nose and forehead to prepare her for her cleft surgeries. Miami felt like our second home since we traveled there for Mila’s numerous surgeries and appointments.” In their pursuit of finding the best care for Mila as she grew older, the Rensing family discovered Nemours Children’s Health. Their first experience with Nemours Children’s was with an audiology test and sleep consultations with […]

On December 24, 2022, our world was shattered when we received the heart-wrenching news that our beloved daughter had been diagnosed with stage 2 lymphoma. The holiday season, meant to be joyous, was clouded with the weight of this devastating revelation. Unable to bring ourselves to share the news on Christmas Eve, it was only two days later, post-Christmas, that we found the courage to inform her about the upcoming scans, setting the stage for a challenging but triumphant journey. The initial discussion with her oncologist became the turning point, revealing both the harsh reality of her condition and the hopeful news that it was treatable. Her strength emerged as a beacon of resilience when confronted with this news. She held back tears and faced the daunting question of how much time she might have left in this world. Jessica shares, “I was disappointed and sad by the news. I was […]