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Laurel’s path to a career in Child Life began during her childhood. At just 3 years old, she experienced the passing of her younger brother due to SIDS, setting the foundation for her comprehension of grief. “I think that experience planted an empathy seed within me,” says Laurel. “It’s really special how I am able to use my experiences to support families here at Nemours Children’s. I’m able to understand grief within a family dynamic, including the sibling perspective, and share my insights, along with my training, into its effects on daily life and a family’s ability to cope.” In fifth grade, Laurel encountered child life firsthand during a hospitalization for a urethral reimplantation. From preparation for surgery to post-operative support, she found peace in the playroom activities and therapeutic interventions facilitated by her Certified Child Life Specialists. It was during these years that she discovered the importance of psychosocial […]

Dillan’s hearing loss was discovered during a routine hearing scan, revealing that she was deaf in her left ear. While Dillan’s family had noticed some challenges with communicating before seeking treatment at Nemours Children’s Hospital, Florida, they were shocked to learn this news. Her family was very eager to find answers and solutions. Having been involved with the groundbreaking of Nemours Children’s Hospital, Florida 10 years ago, Dillan’s family was drawn to the comprehensive care provided under one roof. “Nemours provided seamless care. I love being able to communicate with her doctors in real time,” says Dillan’s mom. With the help of Dr. Morgan Wilcox, Dillan now has a hearing aid for her left ear, making an incredible difference in her hearing. “From the first day I met her, Dillan is always smiling and just has this contagious, feel-good attitude that you can’t help but smile and laugh along with […]

Madison’s dysplasia journey began even before she came into the world. During pregnancy, concerns arose as she was smaller than expected. However it was only after her birth, when she was diagnosed with hip dysplasia, that the first signs of something more complex emerged. X-rays at four months old revealed trident acetabulum and an s-shaped scoliosis, so a skeletal dysplasia genetic testing panel followed, identifying changes in B3GALT6. Variants in this gene are associated with a rare skeletal dysplasia known as spondyloepimetaphyseal dysplasia joint laxity type 1 (SEMDJL1). This condition can cause issues like progressive scoliosis, joint laxity/dislocations, and more. When they found out about her diagnosis, Madi’s family faced uncertainties about what her future might look like. However, Madi’s fiery spirit has shone through. She charms everyone she meets with her sassy personality and infectious joy. Madison’s mom, Anna, emphasizes that her daughter has never allowed anything to hinder […]

During Liane Rensing’s 20-week ultrasound, it was discovered that her baby, Mila, had a cleft lip. This diagnosis expanded when Mila was born with a right-sided incomplete unilateral cleft lip and a complete cleft palate. The first year of her life brought challenges to the Rensing family as they learned to navigate caring for Mila. “We learned how to feed and take care of her with feeding devices like special nipples and bottles,” explains Liane. “We had to figure out how to tape specifically designed appliances to Mila’s nose and forehead to prepare her for her cleft surgeries. Miami felt like our second home since we traveled there for Mila’s numerous surgeries and appointments.” In their pursuit of finding the best care for Mila as she grew older, the Rensing family discovered Nemours Children’s Health. Their first experience with Nemours Children’s was with an audiology test and sleep consultations with […]

On December 24, 2022, our world was shattered when we received the heart-wrenching news that our beloved daughter had been diagnosed with stage 2 lymphoma. The holiday season, meant to be joyous, was clouded with the weight of this devastating revelation. Unable to bring ourselves to share the news on Christmas Eve, it was only two days later, post-Christmas, that we found the courage to inform her about the upcoming scans, setting the stage for a challenging but triumphant journey. The initial discussion with her oncologist became the turning point, revealing both the harsh reality of her condition and the hopeful news that it was treatable. Her strength emerged as a beacon of resilience when confronted with this news. She held back tears and faced the daunting question of how much time she might have left in this world. Jessica shares, “I was disappointed and sad by the news. I was […]

Nemours Children’s Health came into Brandiel’s life when he was having difficulty hearing. Recommended by his school, the hospital has played a pivotal role in their journey. Yaleitza, his mother, remembers the initial challenges they faced with Brandiel growing up. “It was hard,” she says, “He couldn’t hear. We would have to repeat ourselves multiple times. It was just so hard for him.” “I remember when I first found out about his hearing loss diagnosis, it was very difficult for us,” says Yaleitza. Brandiel was diagnosed as deaf in one of his ears. “But Dr. Pritchett made me feel so comfortable with everything.” After some time working with Dr. Pritchett and the team at Nemours Children’s Hospital, Florida, Brandiel was approved for a cochlear implant. Yaleitza, though a bit nervous at first, was excited for this opportunity. Brandiel underwent a cochlear implant procedure when he was 9 years old. Yaleitza […]