Celebrate Nicole Fonseca, RN, whose journey from PICU clerk to registered nurse at Nemours Children’s Hospital, Delaware.
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Associate Highlight: Dr. Rossi’s Pediatric Neurology Journey
Dr. Rossi’s journey to Nemours Children’s Health highlights his dedication to pediatric neurology and collaborative care.
RCDP Awareness Day: Elias’s Story
Brittany and John found themselves navigating uncharted waters when their son, Elias, was diagnosed with rhizomelic chondrodysplasia punctata (RCDP) type 1. RCDP is a rare skeletal dysplasia that affects the body’s ability to produce plasmalogens which are essential for cell structure and nervous system function. Their journey began with the unexpected—low amniotic fluid during Brittany’s induction with Elias at 37 weeks. What followed were suspicions of cerebral palsy, only to discover skeletal differences and cataracts as well. It wasn’t until Elias was ten months old that the diagnosis of RCDP was confirmed. Before Nemours Children’s Health, life for Brittany and John was a whirlwind of uncertainties and challenges. “Our main struggle before diagnosis & coming Nemours was feeding issues,” share Brittany and John. “First, we didn’t realize Elias had a rare form of dwarfism, so we weren’t sure why he wasn’t gaining weight. Second, he developed a bottle aversion at […]
Jayla’s Multiple Sclerosis Journey (In Mother’s Words)
Embark on Jayla’s journey with Multiple Sclerosis (MS) as her mother shares their experiences at Nemours Children’s Health in Jacksonville.
Associate Highlight: Megan Nelson, M.A., CCC-SLP, LSLS Cert. AVT
Meet Megan Nelson, a passionate Speech Language Pathologist at Nemours Children’s Hospital, Florida. Megan’s journey into her career began with a personal connection close to her heart – her cousin Katie, born with CHARGE syndrome and hearing loss. Inspired by the transformative care Katie received, Megan felt compelled to follow a similar path, ultimately becoming a Listening and Spoken Language Specialist, Certified Auditory Verbal Therapist. “I knew I was destined to help other children and their families,” Megan reflects on her decision to pursue this career. “In watching Katie learn to listen and speak, the impact that Katie’s Auditory Verbal Therapist made on her and my family was especially meaningful.” “When I saw the posting for a Speech Language Pathologist for the Nemours Children’s Cochlear Implant team, I knew it was the best fit and applied immediately,” Megan shares. Since then, she has thrived in her role as Lead Auditory […]
Navigating Youth Mental Health
Dr. Monica Barreto highlights the importance of the mind-body connection and the vital role of parents in supporting youth mental health.
Navegando la Salud Mental de los Jovenes
La Dra. Monica Barreto destaca la importancia de la conexión mente-cuerpo y el papel vital de los padres en el apoyo a la salud mental de sus hijos.
From Diagnosis to Determination: Allen’s Brain Tumor Journey
Allen’s brain tumor journey, with support from Nemours Children’s Health in Jacksonville, showcases resilience, comprehensive care, and positivity in adversity.
Living Life to the Fullest: Carly’s Journey with Morquio Type A
For Carly, the journey to a Morquio Type A diagnosis began with uncertainty. As a young child, there were signs that something wasn’t quite right, and her parents embarked on a quest for answers. After a lot of testing and a few misdiagnoses, it wasn’t until Carly was around a year and a half old that a local doctor stumbled upon a small paragraph in a textbook about Morquio Type A, setting the stage for a lifelong medical journey. When her physician, Dr. Kopis from St. Jose Hospital, could no longer practice, Carly’s journey led her to the care of Dr. William Mackenzie at Nemours Children’s Hospital, Delaware. With expertise in skeletal dysplasia, Nemours Children’s was the perfect fit for Carly, offering specialized care tailored to her needs. “From the beginning, my parents loved the care I received at Nemours,” says Carly. “My mom immediately transitioned all of my doctors to […]
Nurses Week: Liz Upadhyaya’s Journey from Marketing to Pediatric Nursing
During Nurses Week, explore Liz Upadhyaya’s journey from marketing to pediatric nursing at Nemours Children’s Hospital in Delaware.
The Power of Community at Nemours Children’s Health
Laura, Jess, Ginny, and Jasmine are remarkable mothers whose paths crossed through their children’s diagnoses. Through shared experiences and care teams, this group of women have formed lasting friendships. Their children, Charlette, Noah, Gino, and Jeremiah, share the diagnosis of osteogenesis imperfecta (OI) and receive compassionate care from the exceptional team at Nemours Children’s Hospital, Delaware. Under the guidance of dedicated clinicians such as Dr. Ricki Carroll, Dr. Jeanne Franzone, Tina McGreal, APRN, Licensed Genetic Counselor Andrea Schelhaas, Sarah Little, PA-C, Katie Harp, LCSW, and many more, these children are thriving in a nurturing environment full of hope. United by a common journey, Laura, Jess, Ginny, and Jasmine were introduced to each other via an online group for parents of children with OI. Through these Facebook groups dedicated to OI, they discovered a community where fears were conquered, victories celebrated, and wisdom exchanged. Laura recalls the moment when she first […]
Nurses Week: Ashley Johnson’s Impactful Journey as a Tracheostomy Nurse Manager
Celebrate Nurses Week with Ashley Johnson’s inspiring journey as Tracheostomy Nurse Manager at Nemours Children’s Hospital in Orlando.
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