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Two days after his birth, Gray started having gastrointestinal complications. It was found that his lower intestine was in a knot and his meconium was so compacted, the surgeons’ tool couldn’t clear it out. Gray was immediately admitted to the NICU and taken in for emergency surgery, before his mother was even discharged from the hospital. Six days after he was born, “We ended up getting a call from Nemours Pulmonology confirming Gray’s diagnoses of Cystic Fibrosis. They told us that he has ‘double delta f508’ and that he has one of the most common genetic mutations for CF,” says Gray’s mother, Lauren. “The phone call was brief, and everything was a blur. We were told that his mutation qualified for really good treatments and that he would have a good prognosis!” “Gray was born with a common condition in children with cystic fibrosis called meconium ileus in which a […]

Discover Reed’s journey with Morquio syndrome, a rare genetic disorder that affects bone growth and calcification.

At 7 months old, Zane Brooks was diagnosed with Morquio A, a genetic condition that causes an enzyme deficiency with bone, heart, vision, and hearing problems. After his older brother (age 2.5 at the time) was diagnosed with Morquio A, Zane underwent genetic testing where he found out he did as well. “As soon as we heard that Morquio may be the diagnosis, we researched online and quickly came to the conclusion that Nemours was the best place for treatment,” said Zane’s mother Kimberlee. “Between blood work and official diagnosis, we watched many medical presentations on YouTube from Dr. Mary Theroux and Dr. Will Mackenzie and knew Nemours was the safest place for our boys.” The day of Zane’s diagnosis, the Brooks reached out to Dr. Theroux and Colleen Ditro. “Within 24 hours we had kind, knowledgeable emails in response,” said Kimberlee. “I remember talking with Colleen days after diagnosis as she walked […]

“Once I started nursing school, I knew I had found my life’s work,” says Senior Clinical Research Nurse Coordinator Becca Davis. Even from a young age, Becca felt drawn to the nursing field. “My earliest memories are of when I was 4 or 5. My mom suffered from chronic migraines. I would bring her water, crackers, and cold wash cloths to make sure she was comfortable,” says Becca. Shortly after completing nursing school, Becca began her career at Nemours Children’s Health in Pensacola. She had visited Nemours as a student and knew it was on the top of her list of future employment goals. “I love our mission to make sure that no child goes without being taken care of,” says Becca. “The culture of compassion we have drives me to show up every day and give my best efforts for the children in our region.” While she moved to […]

Atharv was diagnosed with osteogenesis imperfecta (OI), whose journey of resilience and determination has been made possible with the help of multidisciplinary care team at Nemours Children’s Hospital.

We are thrilled to share the incredible story of twin sisters Tatiana and Talia who both pursued careers in nursing and now work together in the PICU at Nemours Children’s Hospital, Florida! These remarkable women have dedicated their lives to caring for critically ill children, and their unique bond as twins adds an extra layer of compassion and understanding to their work. The pair began working at Nemours after Tatiana moved back to the Central Florida area. She joined Nemours and wanted to get her sister, Talia, back into bedside nursing (which Talia thought she was done with)! “Luckily,” says Tatiana, “Talia applied and got hired, and we both started orientation and training together and working together in the same unit.” The twins love working together and for Nemours. “It’s great that Nemours is close to home and I have my sister who understands when I’ve had a rough, emotional […]