POSTED BY:
Will Nunery

From a young age, Courtney knew she wanted to help others. Growing up in a home full of medical-related conversations, her mother, a dedicated nurse, often shared stories from her shifts. However, it wasn’t until high school that Courtney found herself drawn to pursue a career in medicine herself. During a volunteer stint at her local hospital, she spent time in the nursery. One particular moment stands out in her memory: an infant, no more than a few days old, was experiencing withdrawal symptoms. As a high school student, all she could do was hold the baby. But, the experience ignited a fire within her. She wanted to be the one who could diagnose, treat, and ultimately, heal. Specifically, the field of neonatology captivated her. “I was drawn to medicine and pediatrics in particular to be able to care for and advocate for children who I find to be the […]

Contributed by Maria’s dad Shahid. When Maria was 10 months old, we noticed some abnormalities in her chest and back, but we weren’t able to find a hospital or doctor who understood her situation.  She was frequently ill with pneumonia and breathing was painful. Her condition eventually worsened.   When she was 18 months old, we met a doctor in Peshawar, Pakistan who diagnosed Maria with MPS. It was our first time hearing the word MPS (Mucopolysaccharidosis), so we did online research and reached out to other families. Unfortunately, there is no treatment for rare diseases in Pakistan and there was no family to guide us for diagnosis and treatment. I sent Maria’s bio-samples to India, and Germany where they confirmed that she had MPS, but they were unable to determine her type of MPS. So, I sent her samples to the US and a diagnosis with MPS IV was […]

Contributed by Emily’s mom Elizabeth. Emily is an AMAZING little girl! At 5-years-old, she is comfortable telling people she has a disability and that her muscles work differently than theirs do. Emily was born three months early and diagnosed with cerebral palsy when she was about a year and a half old. Both Emily and her identical twin sister, Sarah, were delayed in reaching their milestones, but Emily’s delays were more pronounced.  Emily is super determined and does everything she can to keep up with her peers. This requires A LOT of hard work! Emily does about 6-7 hours of therapy a week, a combination of PT, OT, and aqua therapy. Since she was about 3, Emily has received intermittent Botox injections to loosen her muscles and give her some additional flexibility and mobility. For example, she learned to walk with lofstrand crutches within 6 months, a task they rarely teach children her age given […]

The pandemic has affected our lives for almost a year and many of us have become used to wearing a mask and social distancing. We must keep doing everything we can, and that means staying six — not four — feet apart and wearing a mask properly at all times. We should also encourage others to do the same so we can eventually have a life without the fear of COVID-19. The only way we can get through this is together, but six feet apart, of course!

There are exciting “extracurricular” projects that we should be completing with our kids to help stimulate their creativity and keep them engaged with the learning process. We put together a list of educational activities that will also help teach your young ones basic life skills.