Guest Contributor, Author at Nemours Blog - Page 13 of 29

POSTED BY:
Guest Contributor

A World of Difference: Sawyer’s Story

In 2023, Stephanie, a mom and homeschool teacher from Virginia, found herself expecting her fourth child. Little did she know, this journey would lead her family to Nemours Children’s Health, bringing them expert care for her newborn son, Sawyer, who was diagnosed with osteogenesis imperfecta (OI) a condition that affects bone strength. In someone with OI, bones may break (fracture) easily, resulting from minor trauma or no clear cause. Before Sawyer’s arrival, Chris and Stephanie’s life felt complete with their three children: Cassie, Evan, and Eli. While unexpected, the news of a new addition to the family was quickly met with surprise and excitement. The entire family eagerly prepared for their newest member’s arrival. On a whim, Stephanie decided to take advantage of an extra ultrasound through a free service that was offered at her Pregnancy Resource Center. She wanted her other children to be involved and thought this was […]

From Immobility to Independence: Yanex’s Story

Yanex’s story began at just nine months old, when his primary care physician noticed something amiss. Keyshla, his mother, recalls that during a routine check-up, she expressed concerns about Yanex’s lack of developmental progress. He wasn’t attempting to sit or crawl, and his movements were limited to lifting his head when placed face down. However, it was Yanex’s head shape that raised the most concern for his doctor. During this check-up, Yanex’s physician ordered an X-ray. That day, the report arrived with a diagnosis of craniosynostosis. Craniosynostosis, a problem where one or more seams between bones in a child’s skull closes too soon, had a significant impact on Yanex’s life prior to treatment. “Yanex only looked comfortable when he was in the car seat, stroller, swing or while being held,” says Keyshla. “He was also exclusively breastfeeding for over a year. Yanex was not independent in the slightest, as if […]

From Pain to Pirouettes: Katie’s Story

In the world of competitive dance, every movement is crucial. For Kiara “Katie” Rodriguez, her dance journey took an unexpected turn when, at the age of 15, when she began experiencing hip pain. What felt like a pulled muscle led her to Nemours Children’s Health, Celebration, where she met with her pediatrician, Dr. Janette Magarino. “We all agreed it might be a pulled muscle,” says Katie. “So, we were told to rest and ice the area and take an anti-inflammatory. However, being the type to not complain, I would just dance through the pain.” As a dedicated dancer, Katie spends five hours a day, six days a week perfecting her craft. As she continued to dance, the pain got worse. “When I was home, the pain was unbearable and at times would leave me screaming or crying,” says Katie. “I couldn’t deal with the pain so I often would lose […]

22q Awareness Day: Jason’s Story

Jason’s story began with a seemingly innocent complaint, ear pain. Concerned for her son, Andrea Salicia vividly remembers the moment she first suspected something was wrong with her son Jason. While feeding him, she noticed that he was twitching, and it didn’t appear to be normal newborn behavior. A few days later, in a terrifying incident, Jason began gasping for air during a feeding, followed by a more severe twitch. Panicked, Salicia rushed him to the Nemours Children’s Hospital, Florida emergency room. It was there that a nurse informed her that Jason’s “twitches” were actually seizures, prompting further investigation. This nurse also thought that he might have a condition called DiGeorge syndrome but didn’t want to say anything until it was confirmed. The medical team then performed a spinal tap and various tests, which led to a diagnosis of 22q11.2 deletion syndrome, also known as 22q or DiGeorge syndrome, at […]

Associate Highlight: Shawn and Tammy

Shawn and Tammy Rolquin are a remarkable couple who share a dedication to making a difference in the lives of children and families. Tammy, a Post-Anesthesia Care Unit (PACU) Registered Nurse, and Shawn, the Manager of the Critical Care Transport Team and Transfer Center, both work for Nemours Children’s Hospital, Florida. While they may have distinct roles within Nemours, the pair occasionally find their paths crossing. The surgical department where Tammy works overlooks the helicopter pad and ambulance bay, offering her an exciting viewing point. “When the timing is perfectly aligned for the both of us,” Tammy says, “I can watch Shawn take off or land in the helicopter. We get to exchange a quick wave and a smile. We are both usually quite busy, but this small occasional moment is very impactful and special for us.” Shawn and Tammy met in college through a mutual friend. “His truck broke […]

A Race to Remember: The Philadelphia Marathon

Nemours Children’s Health is the title sponsor for the Nemours Children’s Run as part of the 2023 Philadelphia Marathon Weekend on November 17-19. As part of our commitment to health and wellness, we recently raffled off five complimentary race bibs.  Tom Jones, Sarah Flynn, and Lauren Miller were our lucky winners of the Philadelphia Marathon Weekend race bib raffle! Get to know them with their cool stories below: Meet Tom Jones, Nemours Estate What does it mean to represent Nemours Children’s in this event?  I work over at Nemours Estate and just love my job. I get to work outside every day. It’s such a beautiful place, and I feel that I am a valued member of my team. I love the fact that Nemours is a sponsor at this race, I feel that these events are helping the community and are in line with our mission of well beyond medicine.  What is your favorite music to […]

Warning Signs: Gianna’s Leukemia

Join Gianna’s inspiring journey from a mysterious illness to a leukemia diagnosis, her tailored treatment at Nemours Children’s Hospital, Delaware.

Page 13 of 29

Page 13 of 29

Page 13 of 29