Guest Contributor, Author at Nemours Blog

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The Heart of a Superhero: Noel’s Story

Superheroes often have an origin story, and Noel Christian’s begins before he was born. When his mother was pregnant, an ultrasound showed that he had a heart condition. It wasn’t until he was 3 months old that he was diagnosed with not one but three heart problems: Noel had his first open heart surgery when he was about 6 months old. He says that years later, “I was so incredibly exhausted, tired and out of breath. It was a horrible experience.” Not being able to exercise was incredibly frustrating for someone who always had a desire to be active. Noel wasn’t able to attend the tae kwon do classes he enjoyed, run or even walk very far. “I couldn’t keep up with my friends,” explains Noel, now 23. “Within a few minutes I would stop walking to catch my breath, and I would make excuses because I felt weak. Every […]

Twin Treatment: Ava and Emma’s Story

Discover how twin sisters Ava and Emma overcame twin-to-twin transfusion syndrome (TTTS) thanks to the expert and advance care at Nemours Children’s Health.

Navigating Crohn’s Disease: Conner’s Story

For Conner and his family, the path to a Crohn’s disease diagnosis came unexpectedly. Conner, an active 11-year-old, was living life to the fullest until sudden symptoms disrupted his world. Stomach pain, rapid weight loss, and an inability to have a bowel movement led Conner to the emergency room. After initial treatment, he was transferred to a local hospital, where an endoscopy and colonoscopy in September 2023 confirmed the diagnosis of Crohn’s disease. Conner’s mom, Charity, shares that the abrupt change in her son’s health was unanticipated. “He was very active right up until about a week before he was hospitalized,” she shared, reflecting on how sudden the symptoms appeared. After diagnosis, Conner and his family were referred to Nemours Children’s Hospital, Florida, by their local physician. There, they found a team of specialists ready to support Conner through every step of his journey. Under the care of Dr. Palomo, […]

5 Tips for a Healthy Flu Season

It’s that time of year again: flu season . Thankfully, there are some steps you can take to help you and your kids avoid spending the winter feeling terrible and curled up with a box of tissues. Just ask your child to follow these five tips from our medical experts: Wash Your Hands Washing your hands is the single most effective method of preventing respiratory illnesses, including the flu. Keep in mind, when washing your hands, make sure to scrub for at least 20 seconds. (Just tell your kids that’s about the time it takes to sing Happy Birthday twice.) Always make sure to wash your hands before and after eating food, after contact with frequently touched surfaces, and after blowing your nose, coughing or sneezing. If you don’t have access to soap and water, make sure to use hand sanitizer. Cover Your Coughs (and Sneezes) When you cough or sneeze, […]

Back In the Game: Lucy’s Story

16-year-old Lucy McCloskey knows what it takes to persevere. As a two-sport varsity high school athlete, she never imagined an injury would turn her world upside down. But after a serious fall during a home game, Lucy was diagnosed with an avulsion fracture of the ischial tuberosity, a painful upper leg injury that left her bedridden, unable to attend school, and struggling to perform even basic tasks like walking or sitting. “It was the worst pain of my life,” Lucy recalls. But thanks to a timely referral from a teammate’s mom, Kelly Quaile, Lucy found herself under the expert care of Dr. Brett Shannon and physical therapist Jeffery Ruth at Nemours Children’s Hospital, Delaware. Lucy’s treatment journey began with Dr. Shannon, who took the time to understand her concerns as an athlete. “He explained all the steps to surgery and even made non-invasive routes available,” Lucy says, appreciating the way […]

A Resilient Return: Caroline’s Story

For athletes like Caroline, injuries can be both physically and mentally challenging, but with a supportive team and the right care, recovery is possible. A patient at Nemours Children’s Hospital, Delaware, Caroline’s journey with ACL tears in both knees tested her strength and perseverance. In September 2020, Caroline tore the ACL in her left knee. Then in May 2023, she faced the same injury on her right knee. Both times, the road to recovery was tough, especially when sports had always been such a big part of her life. Fortunately, Caroline had already been a Nemours Children’s patient for her regular well-visits, so when she got injured the first time, she knew exactly where to turn. “It was an easy decision to go to Nemours,” Caroline explains. When it happened again in the opposite knee, she found comfort in knowing she would receive the highest level of care from familiar […]

A Life Changed by Cochlear Implants: Moksh’s Story

Throughout 8-year-old, Moksh’s life, his mother, Rina and her family, noticed something was different. “He wasn’t able to give a response when we called to him or clapped,” Rina recalls. Concerned, they sought answers from numerous doctors, and one thing became clear—Moksh needed cochlear implants. After a year of searching for answers to help with his hearing loss, Moksh underwent the life-changing surgery that would set him on a new path. Nemours Children’s Hospital, Florida, became a critical part of that journey. After researching their options online and receiving recommendations from other doctors, Rina and her family turned to Nemours for their son’s care. What they found exceeded their expectations. “They are so intelligent,” says Rina about the audiology team. “They did a really good job with surgery and had accurate results. Everyone, from the nurses to the surgeons, were helpful and kind.” Moksh was born with profound sensorineural hearing […]

A mother and son are sitting together in a living room. She is helping him check his blood sugar levels because he is diabetic.

Nemours Researcher Brings Conversation on Diabetes to National Platform

Being diagnosed with Type 1 diabetes is often an overwhelming and life changing experience for children and families. Julia Price, PhD, Pediatric Psychologist at Nemours Children’s Health, works to help patients adjust to life with diabetes, using behavioral interventions to help kids and caregivers communicate about managing this complex illness. A major focus of Price’s work is implementation science, which is aimed at making sure that scientific advances ultimately reach the patients and families who most need them. To raise awareness of this work and demonstrate her leadership in this space, on October 11, Price moderated a panel on community participation and partnerships at a workshop held by the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), part of the National Institutes of Health. “This workshop offered a unique opportunity to connect with leaders in the fields of implementation science, health equity and community-engaged research, all focused on […]

A Journey of Confidence: Dani’s Story

Dani has spent the past five years navigating life with Poland Syndrome. Diagnosed at 14, Dani’s journey took her from feeling insecure about her body to embracing newfound confidence, all with the help of the compassionate team at Nemours Children’s Hospital, Delaware. Poland Syndrome is a condition characterized by the underdevelopment or absence of chest muscles. For Dani, it began to significantly affect her during puberty. “It really started to affect me when I realized that my left breast was not growing as my other one was,” shares Dani. This physical difference impacted her self-esteem, especially during the summer when finding a bathing suit seemed impossible. “It made me very insecure, and it was hard to find confidence within myself,” she shares. Simple activities like shopping for summer shirts or feeling comfortable at the beach became daunting challenges. Dani’s connection to Nemours Children’s began with her sister, who had been […]

Evander’s Cleft Lip Journey

When Raelyn and James went for their 20-week ultrasound in December 2022, they were expecting to hear that everything was progressing perfectly with their baby boy. For the most part, things were. However, during the scan, the doctor and nurse discovered something unexpected—a cleft lip. They explained that their son, Evander, would be born with a unilateral cleft lip, and there was a chance he could also have a cleft palate. For Raelyn, this news was overwhelming. As a new mom unfamiliar with clefts, she found herself navigating a whole new world. “I knew nothing about clefts before this,” she shares. “I spent a lot of time researching and preparing for any outcome.” Raelyn devoted herself to learning as much as she could, connecting with other families and educating herself about what lay ahead. Nemours Children’s Hospital, Delaware, was the first recommendation Raelyn and James received from their local doctor. […]

Standing Tall: K’den’s Story

At the age of 16, elite basketball player K’den faced the challenge of scoliosis head-on, with the support of Nemours Children’s Hospital, Delaware, and the expertise of Dr. Suken A. Shah. “I was experiencing rib pain, and I didn’t know why,” K’den recalls. After a week of difficulty with walking prompted an emergency room visit, K’den quickly found that scoliosis was the cause of his pain. For K’den, Nemours Children’s has always been a familiarity. “I have been a long-time patient,” he shares. “The way they’ve helped me throughout my life has been amazing.” At a young age, K’den received an asthma diagnosis, marking the beginning of his journey as a patient at Nemours Children’s Health. “I was in and out of the hospital seemingly every two weeks because I was struggling to breathe,” says K’den. “During an Emergency Room visit at Nemours Children’s, an X-ray was taken of my […]

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