Guest Contributor, Author at Nemours Blog | Expert Health and Wellness Guidance for Parents

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Back on the Ice: Jeffrey’s Story

Diagnosed with hemihypertrophy and leg length discrepancy at just 9 months old, Jeffrey has undergone a complex medical journey, spanning over a decade. His family chose Nemours Children’s Hospital, Delaware after researching top children’s hospitals near their home in Lehigh Valley, PA. His family was particularly drawn to Dr. Reid Nichols, who would become Jeffrey’s doctor for the next 11 years. Throughout his life, Jeffrey’s treatments have been multifaceted and challenging. Jeffrey underwent several procedures, including an iliotibial fasciotomy/tenotomy, femur shaft osteotomy, and the implantation of a Precice lengthening device, as well as hemiephysiodesis of the distal femur. These interventions were crucial in addressing his leg length discrepancy and associated complications. His mother Amber shares, “We are blessed that Dr. Nichols has been his doctor for 11 years and giving us the best treatment. Her upbeat outlook and confidence in her work gave us the motivation we needed to continue […]

Independence and Confidence: Braulin’s Story

Braulin’s family found out about their son’s diagnosis during Gissette’s pregnancy. Gissette noticed that her local doctor was sending her to do more sonograms and measurements than she had for her previous pregnancies, making Gissette nervous. It was during this time that her care team informed her that Braulin was diagnosed with dwarfism. After receiving the diagnosis, Gissette decided to explore new care options with experts that specialized in dwarfism. “In my country, the Dominican Republic, there wasn’t much information about how to treat or care for a child with dwarfism,” shares Gissette. “I had a lot of questions but no answers. This is when my journey of looking for answers on the internet started.” Through her research, Gissette was able to connect with other parents navigating dwarfism and Little People of America. Once Braulin was born, Gissette took several trips to the United States with Braulin to receive specialized […]

A Smooth Recovery: Karlee’s Story

12-year-old Karlee was riding her bike with her brother and cousin when a sudden mishap sent her tumbling to the ground, her left wrist bearing the brunt of the fall. The impact was immediate, and the pain was intense. “When I fell, I landed on my left wrist and felt a sharp pain in my arm,” Karlee recalls. After the accident, a trusted family member recommended they see Dr. John Lovejoy at Nemours Children’s Hospital, Florida. “All of my doctors and nurses at Nemours were really nice and made sure I was comfortable,” Karlee shares. From the moment she arrived, the team at Nemours took a compassionate approach, ensuring that Karlee felt at ease and understood every step of the process. “Dr. Lovejoy helped me understand what bones I broke and how they planned to fix them,” Karlee says. The detailed breakdown of her injuries and the treatment plan provided […]

Associate Highlight: Jenny Pfieffer, PCNS-BC, APRN, ESMHL

At Nemours Children’s Health, our nursing staff is integral to our mission of providing exceptional care to our patients and families. Jenny Pfieffer, a Clinical Nurse Specialist in our Pediatric Diabetes Center, embodies the dedication, compassion, and innovation that defines our nursing team. With over 20 years of experience, Jenny has made a lasting impact on the lives of countless children and families. Inspired by her mother’s belief that “the sky is the limit,” Jenny began her nursing journey in pediatric emergency care. Her work was driven by a deep love for helping others and making a difference. After relocating to Nemours Children’s Health, Jacksonville from Delaware, she transitioned into nursing administration and eventually found her calling to return to the bedside as a Clinical Nurse Specialist at the Diabetes Center. In this role, Jenny helped create a transition program that supports adolescents moving from pediatric to adult diabetes care. […]

Conoce a Amaia.

Read Amais’s Story in English En enero de 2024, la familia de Amaia llevó a su hija de dos años a la sala de emergencias de Nemours Children’s Hospital, Florida, en Orlando, después de notar que tenía crisis de mirada fija. Las crisis de mirada fija son un tipo de epilepsia focal corta, durante la cual el niño presenta una mirada vacía, confusión o pérdida de la conciencia de su entorno, a menudo sin ningún síntoma perceptible.  Su madre, Stefanie, recuerda el día exacto: “Amaia comenzó a sangrar por la nariz y a comportarse de una manera que no era normal, como girar y mirar hacia su lado izquierdo de una manera muy fuerte y sin moverse, e incluso se puso de color morado. Por eso decidimos llevarla a la sala de emergencias de Nemours”. Esa visita reveló un descubrimiento que les cambió la vida: un tumor cerebral. El impacto […]

Meet Amaia.

Lee la historia de a Amaia en español In January 2024, Amaia’s family brought their two-year-old daughter to the ER at Nemours Children’s Hospital in Florida after noticing staring seizures. Staring seizures are a type of short focal seizure, during which a child will stare blankly, confused or lose awareness of their surroundings, often without any noticeable symptoms.  Her mother Stefanie remembers the exact day: “Amaia started bleeding through her nose and was behaving in a way that was not her normal, such as turning/looking to her left side in a very strong way and not moving – even turning purple [blue]. Then we decided to take her to the ER at Nemours.” That visit revealed a life-changing discovery: a brain tumor. The impact was immediate. “The impact of this news on our lives was extremely strong. I had to stop working to care for Amaia, take her to the […]

Navigating Kidney Stones: Vincent’s Story

At 13 years old, Vincent found himself facing a painful and unexpected health challenge. What began as a nagging low back pain quickly escalated when he noticed blood in his urine. Alarmed, his family took him to urgent care, where the initial tests confirmed the presence of blood but also revealed a more serious issue: a kidney stone. The urgent care team, recognizing the severity, referred them to the Nemours Children’s Health, Lakeland and then to the hospital in Orlando for further evaluation. “I was nervous about the wait time, but their staff worked to fit us in quickly,” says Vincent’s mom, Jessica. “From the beginning, they were responsive and attentive.” The pain Vincent was experiencing disrupted every aspect of his daily life. “He couldn’t rest, enjoy his normal activities, or even feel comfortable sitting or lying down,” Jessica explains. “It was also very stressful for me as a parent […]

A Bright Future: Peter’s Story

Peter, a child with Down syndrome adopted from Hong Kong at the age of 3, has faced numerous health challenges throughout his life. His journey, including multiple surgeries and comprehensive care, is a testament to the importance of dedicated medical support. Peter’s health issues were first identified when his parents noticed he wasn’t thriving. After consulting several specialists, a podiatrist with training at Nemours Children’s referred them to Nemours Children’s Health. After several tests, Peter received a critical diagnosis: his C1-C2 vertebrae were not fused, posing a significant risk to his spinal cord. In September 2017, Peter underwent a lifesaving C1-C2 fusion surgery performed by Dr. William Mackenzie and Dr. Jeffrey Campbell at Nemours. Following the surgery, Peter showed remarkable improvements in various areas, including potty training, communication, and education. However, his journey was far from over as Peter was still experiencing complications with his foot. Further examinations with Dr. […]

Dancing Through Recovery: Sayuri’s Story

During an annual scoliosis screening at Sayuri’s middle school, one of the nurses noticed something unusual about her back. “I remember the nurse checking my back and pointing out that I twisted more to one side, and there was asymmetry with one side rising higher than the other,” Sayuri shares. “She told me that the case is most likely mild or moderate, as the condition was common and those of a higher severity were rare. I was sent home with a letter to my parents to get my back checked.” Sayuri’s initial X-rays confirmed the nurse’s suspicions. “When I got my x-rays done, I was told that I had moderate scoliosis, with a recommendation for a back brace to keep the curve from progressing,” says Sayuri. The diagnosis of adolescent idiopathic scoliosis, characterized by a severe S curve, meant that her life would require some adjustments. As Sayuri grew older, […]

Kinsley’s Story: A Journey of Hope

Our daughter Kinsley’s story began with a broken leg at a very young age. When the cast came off, she refused to walk. Although she showed some other symptoms like a relentless fever and sleeping a lot, “we never anticipated she had cancer,” her parents added.  “Kinsley was diagnosed at age 2 with a very rare form of leukemia known as near haploid B-cell acute lymphoblastic leukemia. This type of leukemia makes up less than 1% of all leukemias worldwide, and comes with a very dismal prognosis.” The months that followed were painful and overwhelming. Kinsley suffered severe side effects during and after treatment. “Watching your child suffer through this horrendous journey is gut-wrenching. It’s brutal, especially when as a parent you can’t do anything but sit on the sidelines and watch. Watch and pray,” her parents said. Despite the challenges, Kinsley showed incredible resilience. She had four bone marrow […]

Associate Highlight: Erin Baker, PT, DPT, ATP, CPST

As a young athlete, Erin had faced her share of injuries, requiring her to go through physical therapy (PT) several times. These transformative experiences that ignited a passion within her. “The care I received sparked a desire to help others regain their ability to participate in the sports and activities they love,” Erin reflects. Initially, she envisioned a career focused on pediatric rehabilitation, driven by her understanding of the challenges young athletes face. However, during her physical therapy schooling, a neurology rotation at the MS Comprehensive Care Center exposed her to world of neurologic rehabilitation.” I was drawn to the complexity and challenge of working with the neurologic population and discovered a passion for adaptive equipment,” says Erin. After graduating, Erin gained valuable experience in both acute care and outpatient settings. Her skills and knowledge grew with each patient she treated. A few years into her career, she was encouraged […]

Associate Highlight: Brittany Virgil, PT

Brittany’s path to Nemours Children’s Hospital, Delaware wasn’t just a series of steps, but a journey fueled by a passion for helping others. Growing up, Brittany had a special bond with her younger cousin, whom she affectionately called her “Little Buddy.” Her cousin was diagnosed with cerebral palsy (CP). Watching him navigate daily challenges and seeing the transformative power of physical therapy (PT) in his life made an impact on Brittany. “The first time I went to his PT session, I instantly knew it was what I wanted to do when I grew up,” shares Brittany. “It is not often that you choose a career when you are so young and it comes true, but for me it did. I work every day in my cousin’s honor, who passed away at a young age.” At Nemours Children’s, Brittany’s role as a Physical Therapist and Cerebral Palsy (CP) Lead in the […]

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