Reagan’s journey with epilepsy and cerebral palsy has been strengthened by the care she received from Nemours Children’s and her advocacy efforts.

Born in November 2013, Savannah passed her initial hearing screening at birth, leaving her parents unaware of any hearing issues. It wasn’t until a playful moment during a game of telephone at age 6 that they discovered Savannah’s hearing impairment. Her father, Gabe, recalls the moment: “I whispered something into her left ear, and she said, ‘Oh no, Daddy, you have to whisper in my other ear. That ear doesn’t work.’” This revelation was the start of Savannah’s hearing journey. This casual game confirmed their initial suspicions. Gabe shares, “When she told us she couldn’t hear out of that ear, it made sense. She was always a loud talker, and her speech curled towards the ear that worked.” The family sought help from hearing specialists, but the initial results were disheartening. “We tried a hearing aid, but it only boosted her hearing from 4% to 12%. It just wasn’t enough,” […]

At the age of 17, Kagan’s life took an unexpected turn when the symptoms of Ulcerative Colitis manifested, leading her to the care of Nemours Children’s Health. Kagan’s diagnosis unfolded in early October 2021, just two months into her senior year of high school. Suffering from months of severe abdominal pain, bloody stools, rapid weight loss, vomiting, and more, Kagan’s health was severely affected. She was scheduled for a colonoscopy to address her symptoms, but upon having labs done in the preparation room, it was discovered that she was too iron deficient anemic to have the procedure. Kagan was then hospitalized at Wolfson Children’s Hospital. There, her care team from Nemours Children’s Health, Jacksonville diagnosed her with Ulcerative Pancolitis and she was scheduled to receive blood transfusions, later have a colonoscopy, and develop a treatment plan once. Overall, this resulted in a 9-day hospital stay. Before making that long trip […]

Thanks entirely to the generous support of our donors, Nemours Children’s Health, Jacksonville, in collaboration with Wolfson Children’s Hospital, hosts the Jacksonville DiaBesties Camp. This free five-day camp — the only one of its kind in our community — provides kids with diabetes from Northeast Florida and Southeast Georgia the opportunity to enjoy a traditional camp experience in a medically-safe environment. Our team of physicians, nurses, diabetes educators, social worker, psychologists, and volunteers donate their time to ensure this camp is accessible to all families, regardless of their resources. The benefits of camp are extensive and transformative. Children can spend time with others who understand their journey, fostering long-lasting relationships. They receive psychosocial support, increase their ability to manage their diabetes care independently, and more. Jacksonville DiaBesties Camp is not just a camp — it’s a community that allows children with diabetes to understand their disease better and learn how […]

When Kimberly’s son was 4 years old, he ran to answer the phone—his favorite uncle was calling. As he ran into the carpeted family room, he tripped and fell, head-first into the brick fireplace. Kimberly says, “As we know, head lacerations bleed profusely. However, being my first child, having his first major injury, and being pregnant with my second child, I was an absolute mess. My training First Aid Training from being in the fire service went right out the window, as it was now my child injured.” Within all her panic, Kimberly immediately knew the best care for her child and knew exactly where to take him. “Born and raised in Philadelphia and moving to Delaware in my teens, I always heard about Nemours Children’s Hospital, Delaware. ‘Take your child to Nemours Children’s’ ‘Nemours is the best,’ but I never had to go there myself, so I had no […]

Joshua’s story begins with his 20-week anatomy scan, which revealed signs of a lower urinary tract obstruction. Born with underdeveloped and cystic kidneys, he was diagnosed with chronic kidney disease. Holly, Joshua’s mother, recalls, “We were told before his birth that if he survived, he would need dialysis to bridge him to a kidney transplant.” “Joshua’s condition has been difficult since birth,” shares Holly. “He had frequent labs, appointments, hospitalizations, and dialysis. His treatments have always been a bridge to transplant. He was medically fragile which impacted the entire family. We have spent much of his life isolating and with limited activity. Despite all this, we know that God is good and we have relied on our faith to help us through the difficult years.” A pivotal moment in Joshua’s journey came when Nemours Children’s Health entered their lives. Recommended by their local medical team, Joshua’s family transitioned to care […]