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TOF

Facing a Rare Heart Condition: Mathew’s Story

Mathew’s mother, Megan, was 28 weeks pregnant when she learned her baby had Tetralogy of Fallot (TOF), a rare, congenital condition caused by a combination of four heart defects that change the way blood flows through the heart and to the lungs, resulting in less oxygen-rich blood being carried to the body. Mathew would need surgery soon after birth and Megan’s OBGYN referred her to Dr. Mehta at Nemours Children’s Health, Pensacola. “As a first-time mom, I was terrified and spent countless hours Googling all the worst-case scenarios,” recalls Megan. “But Dr. Mehta reassured me with a simple, ‘I got you.’” Sure enough, Mathew came home on Thanksgiving Day, four days after he was born. Mathew’s Surgery Three weeks later, Mathew’s oxygen saturation dropped into the 30s — he needed open-heart surgery and Megan requested a transfer to Nemours Children’s Hospital, Florida. “The patient and family care at Nemours Children’s […]

Allison: Tetralogy of Fallot, Hip Dysplasia and Ear Tubes

“Giving back and helping others is one of the best feelings. To know you helped someone when they were feeling scared and alone.” – Allison, Former Patient, Current Nemours Associate I’m Allison and I’m 26 years old and I work in the Nemours Cardiac Center at Nemours Children’s Hospital, Delaware in Wilmington. I was diagnosed at birth with Tetralogy of Fallot with anomalous origin of the anterior descending coronary artery from the right coronary artery. I had my first open heart surgery at 4 days old for the transannular patch to repair the ventricular septal defect (VSD). In all, I had three open heart surgeries (two in 1998 and one 2013), six cardiac catheterizations and two loop recorders (in 2020 and 2023, respectively). I was also diagnosed at birth with hip dysplasia in my left hip, and I wore a Pavlik harness [a shoulder harness that attaches to foot stirrups] […]

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