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orthopedic surgery

When Carrie Benyo’s femur broke at just eight weeks old, her family wasn’t surprised. Osteogenesis Imperfecta (OI) ran in their family, and Carrie quickly became familiar with the challenges that came with it—multiple fractures and the need for specialized care. So when her daughter, Vaeda, was born, Carrie didn’t wait for the first fracture to seek answers. Through cord blood testing at birth, Vaeda was diagnosed with OI Type 1 when the results came back just four weeks later. Determined to find the best care for her daughter, Carrie discovered Nemours Children’s Hospital, Delaware, a nationally recognized leader in OI treatment. “I wanted the best specialists I could find for her,” shares Carrie. What started as a search for Vaeda’s care soon became a turning point for Carrie, too. “When they said they could treat me too I started seeing them as well. Before that I did not have routine […]

Raising a child with cerebral palsy (CP) comes with unique challenges and triumphs. In this Q&A, Declan’s mom, Kianna, shares her family’s journey—from navigating his diagnosis to finding the right care team at Nemours Children’s Hospital, Delaware. She reflects on the impact of CP on their daily lives, the importance of expert support, and how Dr. Shrader and the CP team have given them hope for Declan’s future. What is the most challenging part of the day for Declan? Declan’s biggest day-to-day challenge is working around his mind-body interactions. He is a very active kid and loves to play games at recess with his friends, but his legs don’t always cooperate. He has always been able to find a way to adjust, but his competitive spirit means he gets frustrated with the limitations CP places on him. What is Declan’s favorite part of the day? Declan’s favorite part of the […]

When Julieta was just 1 month old, she was diagnosed with Spinal Muscular Atrophy type 1 (SMA Type 1). SMA is a rare genetic condition that causes muscle weakness and atrophy, significantly impacting Julieta’s ability to walk, sit up, and control her head movements. It also affected her ability to speak and eat. Julieta’s mother, Melissa, recalls the initial shock and heartbreak that accompanied the diagnosis: “After I got the call with her results, I was told by five neurologists that she was not going to make it past 1 year of age. Obviously, this put me in a sad and grieving mental state. We as a family were devastated.” Shortly after receiving her diagnosis, Julieta was referred to Nemours Children’s Hospital, Florida by a neurologist in Miami. “After I visited Nemours and felt finally safe and with big hopes for my daughter, I went back to Dr. Miller in […]

Alek is a courageous patient whose journey with severe kyphoscoliosis led him across the globe to Nemours Children’s Hospital, Delaware. Kyphoscoliosis is a dangerous condition that affects the spine. It causes an abnormal curve in two directions, side to side and front to back. It is a combination of two other conditions: kyphosis, which causes a severely rounded appearance of the back, and scoliosis, where the vertebrae form a curvature instead of being straight. Alek’s diagnosis unfolded in Poland in 2010 when he was a young boy. The road ahead seemed daunting as his condition gradually worsened. “Before starting treatment at Nemours Children’s, Aleksander’s condition was very bad,” shares his family. “He had trouble with breathing and couldn’t eat and walk. He lived in chronic pain.” It wasn’t until after a failed operation in Poland that Alek’s family discovered Nemours Children’s. Referred by their physician in Poland, Alek and his […]

At Nemours Children’s Hospital, Delaware, Dr. Suken A. Shah, The Shands/MacEwen Endowed Chair of Orthopedics and Chair of the Department of Orthopedic Surgery, leads with expertise and unwavering dedication to improve the lives of patients. His professional journey is rooted in a commitment to medicine and determination to solve complex cases. Reflecting on his early career decisions, Dr. Shah notes, “I was drawn to surgery early on, particularly during my medical school years.” Exposure to orthopedic surgery and guidance from esteemed mentors set him on the path to becoming a pediatric orthopedic surgeon. Dr. Shah’s decision to specialize in orthopedics stemmed from a desire to restore function and mobility, particularly in pediatric patients, setting the stage for his impactful career. Critical thinking and collaboration are essential components of patient care for Dr. Shah. “The most rewarding aspects of our work are when we can help a child with a complex […]

Brittany and John found themselves navigating uncharted waters when their son, Elias, was diagnosed with rhizomelic chondrodysplasia punctata (RCDP) type 1. RCDP is a rare skeletal dysplasia that affects the body’s ability to produce plasmalogens which are essential for cell structure and nervous system function. Their journey began with the unexpected—low amniotic fluid during Brittany’s induction with Elias at 37 weeks. What followed were suspicions of cerebral palsy, only to discover skeletal differences and cataracts as well. It wasn’t until Elias was ten months old that the diagnosis of RCDP was confirmed. Before Nemours Children’s Health, life for Brittany and John was a whirlwind of uncertainties and challenges. “Our main struggle before diagnosis & coming Nemours was feeding issues,” share Brittany and John. “First, we didn’t realize Elias had a rare form of dwarfism, so we weren’t sure why he wasn’t gaining weight. Second, he developed a bottle aversion at […]