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Nemours Children’s Hospital

Meghan’s journey with Bladder Neck Dysfunction unfolded over the course of several years, involving many visits to urologists. It was only when she sought the expertise of Dr. Hagerty, making the journey all the way from Rhode Island to Nemours Children’s Hospital, Delaware, that a diagnosis was finally made. Before treatment at Nemours Children’s, bladder issues had caused many complications throughout Meghan’s life. Pain, discomfort, urinary retention, and bladder spasms were constant obstacles, making it difficult for her to attend school and participate in social activities. Her condition had become a barrier to living her teenage life. However, Nemours proved to be a place of hope for Meghan and her family. The kindness and compassion given by every staff member, from the front desk to the medical professionals, left a lasting impression. So much so that Meghan even suggested relocating to Delaware upon leaving the hospital – a testament to […]

Join Ryan’s inspiring journey through epilepsy and Tuberous Sclerosis Complex, as his mother shares about navigating uncertainties, embracing therapies, and finding strength in the support of Nemours Children’s Hospital.

Follow Kaden’s inspiring journey through Burkitt’s Lymphoma, from a devastating diagnosis to overcoming challenges with chemotherapy, lumbar punctures, and the unwavering support of family and Nemours Children’s Hospital.

At Marcella’s 20-week ultrasound, she learned that her unborn child, Brody, had skeletal dysplasia. This news caused a whirlwind of emotions, but little did she know that this journey would lead her to the incredible team at Nemours Children’s Hospital, Delaware, setting them on a path of resilience and discovery. With this news, Marcella dove into gathering information to understand the unique challenges that Brody might face. Although they lived in Wichita, KS, her research led her to the Nemours Children’s Orthopedics team. Brody’s first appointment at Nemours didn’t come until six months, although Marcella was in touch with the skeletal dysplasia team shortly after he was born. She connected with Colleen Ditro, DNP, CPNP who would become an integral part of Brody’s journey. As Brody came into the world, so did a definitive diagnosis of diastrophic dysplasia, a rare genetic condition that causes dwarfism. Their local NICU was ill-equipped to […]

In 2023, Stephanie, a mom and homeschool teacher from Virginia, found herself expecting her fourth child. Little did she know, this journey would lead her family to Nemours Children’s Health, bringing them expert care for her newborn son, Sawyer, who was diagnosed with osteogenesis imperfecta (OI) a condition that affects bone strength. In someone with OI, bones may break (fracture) easily, resulting from minor trauma or no clear cause. Before Sawyer’s arrival, Chris and Stephanie’s life felt complete with their three children: Cassie, Evan, and Eli. While unexpected, the news of a new addition to the family was quickly met with surprise and excitement. The entire family eagerly prepared for their newest member’s arrival. On a whim, Stephanie decided to take advantage of an extra ultrasound through a free service that was offered at her Pregnancy Resource Center. She wanted her other children to be involved and thought this was […]

In the world of competitive dance, every movement is crucial. For Kiara “Katie” Rodriguez, her dance journey took an unexpected turn when, at the age of 15, when she began experiencing hip pain. What felt like a pulled muscle led her to Nemours Children’s Health, Celebration, where she met with her pediatrician, Dr. Janette Magarino. “We all agreed it might be a pulled muscle,” says Katie. “So, we were told to rest and ice the area and take an anti-inflammatory. However, being the type to not complain, I would just dance through the pain.” As a dedicated dancer, Katie spends five hours a day, six days a week perfecting her craft. As she continued to dance, the pain got worse. “When I was home, the pain was unbearable and at times would leave me screaming or crying,” says Katie. “I couldn’t deal with the pain so I often would lose […]