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Nemours

Rayne, an active pre-teen, was participating in a fun day at school, playing a game of Capture the Flag. During the game, a sudden and unexpected fall resulted in Rayne’s leg hyperextending. The impact was severe, and her left tibia cracked at her knee. Her parents immediately rushed her to their local hospital in Lewes, DE. Upon arrival, the hospital staff performed an X-ray, which revealed the fracture. However, the fracture involved Rayne’s growth plate, a critical area that requires specialized care to ensure proper healing and prevent long-term complications. Recognizing the severity and the need for expert pediatric orthopedic care, the local doctors referred Rayne and her family to Nemours Children’s Hospital, Delaware. Without hesitation, Rayne’s parents packed up and made the two-hour drive to Nemours Children’s. Upon reaching Nemours, the family was greeted by a team of highly skilled and compassionate medical professionals. “We were terribly frightened,” Rayne’s […]

When Lex was just a baby, his pediatrician noticed something was off about the shape of his head, leading to a diagnosis of craniosynostosis, a condition where the skull’s sutures fuse prematurely. Craniosynostosis is when one or more seams between bones in a child’s skull close too soon. When this happens, the skull can’t grow properly and develops a different shape. Despite facing multiple surgeries and challenges, Lex and his family have found unwavering support and care at Nemours Children’s Hospital, Florida. Through it all, Lex has shown incredible resilience.  “His pediatrician noticed that his head shape was not normal and immediately referred us to Nemours,” shares Lex’s mother, Courtney. At Nemours Children’s the medical team conducted a series of tests and scans. In addition to the craniosynostosis, Lex was also found to have elevated cerebrospinal fluid (CSF) pressure, pituitary gland shrinkage, and a host of symptoms, including severe headaches […]

Hudson’s persistent symptoms of pain, feeding difficulties, and faltering growth left his mother, Heather, and her husband, searching for an explanation. Hudson’s condition had taken a toll on the family’s daily life. Heather shares, “Hudson would cry and be unsettled for numerous hours in a day. He would throw up his formula, and we had tried seven different types, hoping one would make a difference.” The constant vomiting made it nearly impossible to leave the house, and Heather had to resign from her 18-year career in Special Education to focus on her son’s care. Every day was a struggle, but Heather’s unwavering dedication and advocacy for her son never wavered. Determined to find answers, Heather and her husband reached out to multiple healthcare providers. It wasn’t until a CT scan at 6 months revealed brain swelling due to severe malnutrition that the true extent of Hudson’s condition became clear. “Prior […]

Born with a unilateral cleft lip and palate, Dylan’s journey has been marked by numerous surgeries and dedicated medical care. But it’s also a story of staying positive and forming lasting connections. A cleft of the lip or palate happens when a baby is born with an opening in the upper lip or the roof of the mouth (the palate). A cleft happens when parts of the lip and/or palate do not fuse together completely. For Dylan, this diagnosis has always been a part of his life. “I can’t really remember much from before then,” he reflects. “I always had the cleft lip and palate, and as a child, I thought it was normal. Every kid went through it.” When Dylan was around 5 years old, his family moved from California to Delaware. This relocation marked the beginning of his long-term relationship with Nemours Children’s Hospital, Delaware. “My mother had to […]

18-year-old Chloe is preparing for her next chapter while continuing to manage a rare skeletal dysplasia with the support of her care team at Nemours Children’s Hospital, Delaware. Her medical journey began early, and has been shaped by expert care, community, and a team that understands her unique needs. During her mother, Cynthia’s, pregnancy, an ultrasound revealed that Chloe would be born with a form of dwarfism. These early signs prompted close monitoring and additional testing after birth. It wasn’t until she was about 1.5 years old that Chloe underwent genetic testing, confirming a spondyloepiphyseal dysplasia (SED) diagnosis. SEDs are disorders that involve both the spine and the ends of long bones. Patients with SED often experience musculoskeletal problems with the neck, spine, lower limbs, feet, and joints. As her family navigated the early stages of her diagnosis, they connected with Little People of America (LPA). While attending an LPA regional […]

In February, our daughter Annistyn broke her humerus when she fell off a snowmobile in New York. After a visit to a local urgent care and an X-ray, we were referred to Nemours Children’s Health, Lakeland—and from that moment on, everything was handled with such care and compassion. From the very first phone call, Nemours made us feel supported. They confirmed directions, sent all documents ahead of time, and ensured our arrival and appointment were seamless and right on schedule. We were met by smiles and kind staff from the very first interaction to the last. Every person we encountered treated Annistyn like she was their own—with warmth, patience, and expertise. Under the care of Kevin Osborne, PA-C, Annistyn was put in a sling for immobilization. One thing that truly stood out to me as a parent was how they spoke directly to Annistyn about her care. They didn’t just […]