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Nemours

When Yara was born, her family received news that they hadn’t anticipated – she didn’t pass her newborn hearing screening. While she was a happy baby who responded to sounds and hit developmental milestones, follow-up tests eventually confirmed that she had mild hearing loss. “At first, I had so many questions and concerns about her future – how this might affect her education, her ability to grow into adulthood with this diagnosis,” Yara’s mother, Ashley shares. “But as a family, we knew we would navigate this challenge together.” After receiving a referral from their pediatrician, Yara’s family turned to Nemours Children’s Hospital, Florida for answers. It was when they met Dr. Morgan Wilcox, pediatric audiologist, that they finally felt they fully understood Yara’s diagnosis. “We immediately felt at ease with Dr. Wilcox and her comforting and reassuring approach,” says Ashley. “She explained everything clearly, answered all our questions, and helped […]

For 10-year-old Taylor, every step of her journey has been guided by determination, expert care, and a team that feels more like family. Diagnosed at birth with fibular hemimelia, proximal femoral focal deficiency (PFFD), clubfoot, and leg length discrepancy, she has faced challenges with mobility from an early age. But with the right medical team by her side, Taylor is making incredible strides toward walking on two evenly balanced feet. Taylor’s family had long placed their trust in Dr. Shawn Standard, a highly respected specialist in limb lengthening and reconstruction. So when Dr. Standard moved his practice to Nemours Children’s Hospital, Florida, in fall 2024, Taylor’s family didn’t hesitate to follow. Under the care of Dr. Standard, Taylor has undergone a series of treatments designed to improve her mobility and function, including super ankle surgery, external and internal fixators for limb lengthening, ankle fusion, and the placement of 8 plates. […]

At 13 years old, Emma keeps a packed schedule. She’s a multi-sport athlete, playing field hockey and lacrosse and running track. All sports that require endurance, strength, and, of course, strong breathing. But in the summer of 2024, during a track meet, Emma found herself struggling to catch her breath. Emma had experienced breathing issues before and had even been treated for asthma as a child. But this time, things felt different. So, her family turned to a place they knew and trusted: Nemours Children’s Hospital, Delaware. “We’ve been going to Nemours Children’s since Emma was little,” says her mom, Melissa. “Even though we don’t live super close, we’ve always been happy with the care we’ve received there. We continue to go back when we need care beyond what our family doctor can provide.” Emma first saw the pulmonology team at Nemours, but after a thorough evaluation, they suggested the […]

When Zohan was born, his parents were overjoyed to welcome their little boy into the world. But shortly after his birth, doctors noticed differences in his leg length and foot shape. After further testing, they diagnosed Zohan with fibular hemimelia, a condition where the fibula bone in the lower leg is missing or underdeveloped. From an early age, Zohan adapted to his condition, often running and walking on his toes. But as he grew, he faced challenges—difficulty wearing standard shoes, fatigue, and limitations in certain activities with his peers. His parents, determined to find the best care for him, were introduced to Nemours Children’s Hospital, Florida through their primary care provider. Their own research confirmed Nemours Children’s reputation for advanced limb reconstruction, and they knew they had found the right place. From their first visit, Zohan’s family felt reassured by Dr. Jason Malone, Dr. Shawn Standard, and the entire care […]

When Piper was just a year old, her parents, Chris and Erin, noticed something unusual—she woke up one morning with a puffy face. Concerned, they took her to Nemours Children’s Hospital, Delaware, where doctors quickly determined there was a kidney issue. What followed was a long and complex journey to find the right diagnosis. After weeks of testing, Dr. Tapia identified Piper’s condition as Denys-Drash Syndrome—a rare and serious kidney disorder with only about 250 known cases worldwide. For the next seven months, Piper underwent treatment, but as her disease progressed, her family faced a difficult decision. To prevent the development of Wilms tumor—an almost certain outcome of Denys-Drash—it was decided Piper’s kidney would be removed under the care of Dr. Stephen Dunn. By December, she received a life-changing gift: a kidney transplant from her dad, Chris. “Dr. Dunn is a gift from God,” says Chris. “He gave our daughter […]

In October 2016, three-year-old Gabriella’s and her family’s world changed in an instant. She was diagnosed with rhabdomyosarcoma, a type of cancer that affects soft tissue. For her parents, Melissa and Shawn, time seemed to stand still. “So many emotions to describe that minute and the minutes, days, hours, weeks, months, and years since…” Melissa shares. But as they look back, their focus is on gratitude—on the people who stood beside them, the care that lifted them up, and the hope that carried them forward. Gabriella’s journey began under the care of Dr. Thacker, orthopedic surgeon at Nemours Children’s Hospital, Delaware. “We remember the words he spoke to us,” Melissa recalled. “But more importantly, we remember that his tone and demeanor were filled with sympathy, concern, and hope.” From the very beginning, Dr. Thacker was more than a physician—he was a constant source of support. Through chemotherapy, amputation, infections, and […]