Neurology Archives - Nemours Blog

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Neurology

Headache Awareness Week – Ella’s Story

At 15, Ella Wright had been battling painful headaches for years when she was eventually diagnosed with accommodative infacility. She went through months of eye therapy, and while her eyes began focusing correctly, the headaches still didn’t go away. That’s when her family returned to the doctor this time, they were referred to Nemours Children’s Health in Jacksonville, Florida. Before Nemours, Ella struggled with frequent, debilitating headaches. Her family described her as “relying on over-the-counter medication more than five days a week just to get through the day. After school, she’d go straight to bed, needing a dark, quiet room to cope with the pain.” The constant discomfort affected her mood, her energy, and her ability to enjoy daily life. We live in Georgia and weren’t familiar with Nemours,” her family said. “But everyone there has been wonderful. Dr. Janet Leon, Nemours pediatric neurologist, is outstanding—she’s a great listener, very […]

Following His Dreams: Kollin’s Journey

At 12 years old, Kollin isn’t letting anything slow him down. A lifelong patient at Nemours Children’s Hospital, Delaware, Kollin’s journey to his narcolepsy diagnosis started when he found himself constantly exhausted. “My father has narcolepsy, so when I was tired all the time, my mom requested to have a sleep study done,” Kollin shares. A sleep study, also called a polysomnogram, is an overnight test that helps doctors diagnose sleep disorders, including narcolepsy. During the study, sensors are placed on different parts of the body to monitor breathing, brain activity, heart rate, and movement while a child sleeps. It provides essential information to guide treatment and improve sleep health. “I really don’t like sleep studies because of all the wires and goop in my hair,” shares Kollin. But after his second long sleep study, the results were clear—he had narcolepsy, just like his dad. The diagnosis meant he could […]

Reagan’s Epilepsy and CP Journey

Reagan’s journey with epilepsy and cerebral palsy has been strengthened by the care she received from Nemours Children’s and her advocacy efforts.

From Traumatic Brain Injury to Rehab: Jamison’s Story

Last July, I was in the car going for a normal drive with my parents when suddenly the unthinkable happened. Our car flipped over and I was ejected 30 ft from the car. I had suffered a traumatic brain injury (TBI) with left hemiparesis. Due to the seriousness of my injuries, I was immediately airlifted to Nemours Children’s Hospital, Delaware. For my first month in the hospital, I was in the Intensive Care Unit (ICU). At the start of my second month in the hospital, I spent most of my time in rehab. I had to learn how to talk, walk, and eat solid foods all over again. I also had to spend about 3 months in a wheelchair.   When I was initially released from the hospital I continued to go to therapy 5 days a week. But life at home was now different. I had to walk around the […]

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