ARTICLES RELATED TO:
Neurology

Read Amais’s Story in English En enero de 2024, la familia de Amaia llevó a su hija de dos años a la sala de emergencias de Nemours Children’s Hospital, Florida, en Orlando, después de notar que tenía crisis de mirada fija. Las crisis de mirada fija son un tipo de epilepsia focal corta, durante la cual el niño presenta una mirada vacía, confusión o pérdida de la conciencia de su entorno, a menudo sin ningún síntoma perceptible.  Su madre, Stefanie, recuerda el día exacto: “Amaia comenzó a sangrar por la nariz y a comportarse de una manera que no era normal, como girar y mirar hacia su lado izquierdo de una manera muy fuerte y sin moverse, e incluso se puso de color morado. Por eso decidimos llevarla a la sala de emergencias de Nemours”. Esa visita reveló un descubrimiento que les cambió la vida: un tumor cerebral. El impacto […]

Lee la historia de a Amaia en español In January 2024, Amaia’s family brought their two-year-old daughter to the ER at Nemours Children’s Hospital in Florida after noticing staring seizures. Staring seizures are a type of short focal seizure, during which a child will stare blankly, confused or lose awareness of their surroundings, often without any noticeable symptoms.  Her mother Stefanie remembers the exact day: “Amaia started bleeding through her nose and was behaving in a way that was not her normal, such as turning/looking to her left side in a very strong way and not moving – even turning purple [blue]. Then we decided to take her to the ER at Nemours.” That visit revealed a life-changing discovery: a brain tumor. The impact was immediate. “The impact of this news on our lives was extremely strong. I had to stop working to care for Amaia, take her to the […]

Peter, a child with Down syndrome adopted from Hong Kong at the age of 3, has faced numerous health challenges throughout his life. His journey, including multiple surgeries and comprehensive care, is a testament to the importance of dedicated medical support. Peter’s health issues were first identified when his parents noticed he wasn’t thriving. After consulting several specialists, a podiatrist with training at Nemours Children’s referred them to Nemours Children’s Health. After several tests, Peter received a critical diagnosis: his C1-C2 vertebrae were not fused, posing a significant risk to his spinal cord. In September 2017, Peter underwent a lifesaving C1-C2 fusion surgery performed by Dr. William Mackenzie and Dr. Jeffrey Campbell at Nemours. Following the surgery, Peter showed remarkable improvements in various areas, including potty training, communication, and education. However, his journey was far from over as Peter was still experiencing complications with his foot. Further examinations with Dr. […]

As a young athlete, Erin had faced her share of injuries, requiring her to go through physical therapy (PT) several times. These transformative experiences that ignited a passion within her. “The care I received sparked a desire to help others regain their ability to participate in the sports and activities they love,” Erin reflects. Initially, she envisioned a career focused on pediatric rehabilitation, driven by her understanding of the challenges young athletes face. However, during her physical therapy schooling, a neurology rotation at the MS Comprehensive Care Center exposed her to world of neurologic rehabilitation.” I was drawn to the complexity and challenge of working with the neurologic population and discovered a passion for adaptive equipment,” says Erin. After graduating, Erin gained valuable experience in both acute care and outpatient settings. Her skills and knowledge grew with each patient she treated. A few years into her career, she was encouraged […]

Hudson’s persistent symptoms of pain, feeding difficulties, and faltering growth left his mother, Heather, and her husband, searching for an explanation. Hudson’s condition had taken a toll on the family’s daily life. Heather shares, “Hudson would cry and be unsettled for numerous hours in a day. He would throw up his formula, and we had tried seven different types, hoping one would make a difference.” The constant vomiting made it nearly impossible to leave the house, and Heather had to resign from her 18-year career in Special Education to focus on her son’s care. Every day was a struggle, but Heather’s unwavering dedication and advocacy for her son never wavered. Determined to find answers, Heather and her husband reached out to multiple healthcare providers. It wasn’t until a CT scan at 6 months revealed brain swelling due to severe malnutrition that the true extent of Hudson’s condition became clear. “Prior […]

At 15, Ella Wright had been battling painful headaches for years when she was eventually diagnosed with accommodative infacility. She went through months of eye therapy, and while her eyes began focusing correctly, the headaches still didn’t go away. That’s when her family returned to the doctor this time, they were referred to Nemours Children’s Health in Jacksonville, Florida. Before Nemours, Ella struggled with frequent, debilitating headaches. Her family described her as “relying on over-the-counter medication more than five days a week just to get through the day. After school, she’d go straight to bed, needing a dark, quiet room to cope with the pain.” The constant discomfort affected her mood, her energy, and her ability to enjoy daily life. We live in Georgia and weren’t familiar with Nemours,” her family said. “But everyone there has been wonderful. Dr. Janet Leon, Nemours pediatric neurologist, is outstanding—she’s a great listener, very […]