Explore Griffin’s inspiring journey with complex medical conditions and how his family found hope at Nemours Children’s Hospital, Delaware.
ARTICLES RELATED TO:
Neurology
Reagan’s Epilepsy and CP Journey
Reagan’s journey with epilepsy and cerebral palsy has been strengthened by the care she received from Nemours Children’s and her advocacy efforts.
Associate Highlight: Dr. Rossi’s Pediatric Neurology Journey
Dr. Rossi’s journey to Nemours Children’s Health highlights his dedication to pediatric neurology and collaborative care.
Jayla’s Multiple Sclerosis Journey (In Mother’s Words)
Embark on Jayla’s journey with Multiple Sclerosis (MS) as her mother shares their experiences at Nemours Children’s Health in Jacksonville.
From Traumatic Brain Injury to Rehab: Jamison’s Story
Last July, I was in the car going for a normal drive with my parents when suddenly the unthinkable happened. Our car flipped over and I was ejected 30 ft from the car. I had suffered a traumatic brain injury (TBI) with left hemiparesis. Due to the seriousness of my injuries, I was immediately airlifted to Nemours Children’s Hospital, Delaware. For my first month in the hospital, I was in the Intensive Care Unit (ICU). At the start of my second month in the hospital, I spent most of my time in rehab. I had to learn how to talk, walk, and eat solid foods all over again. I also had to spend about 3 months in a wheelchair. When I was initially released from the hospital I continued to go to therapy 5 days a week. But life at home was now different. I had to walk around the […]
Israel’s Journey: Overcoming Meningitis and Nasal Encephalocele (In His Mom’s Words)
Read the impactful story of Israel, who, after developing meningitis and discovering an encephalocele during vacation, undergoes a successful seven-hour surgery at Nemours Children’s Hospital.
El valiente viaje de Israel: Superando la Meningitis y la Encefalocele (En Palabras de la Madre)
Lee la impactante historia de Israel, quien, tras desarrollar meningitis y descubrir una encefalocele durante unas vacaciones en Orlando, Florida.
Navigating the Unknown: Ryan’s Journey with Epilepsy and Tuberous Sclerosis Complex (In Mother’s Words)
Join Ryan’s inspiring journey through epilepsy and Tuberous Sclerosis Complex, as his mother shares about navigating uncertainties, embracing therapies, and finding strength in the support of Nemours Children’s Hospital.
Celebrating Amy Duffy: An Exceptional EEG Tech and Advocate during Epilepsy Awareness Month
Amy Duffy, an exceptional EEG Technician at Nemours Children’s Hospital, shares her dedication in Neurodiagnostic technology during Epilepsy Awareness Month.
An Unexpected Illness: Jason’s Story
Jason’s story began with a seemingly innocent complaint, ear pain. Concerned for her son, Andrea promptly scheduled an appointment with their Nemours Children’s Health primary care pediatrician, Dr. John Clore. Initially, the diagnosis appeared to be a mild outer ear infection. However, later that day Jason began vomiting consistently. The family returned to Dr. Clore’s office, who advised them to seek emergency care at our hospital. Little did they know that this visit would mark the start of a challenging journey. Jason was tested for various illnesses, including strep, flu, and COVID-19, but all the results came back negative. It wasn’t until they reached the emergency room at Nemours Children’s Hospital, Florida that the real diagnosis was discovered – strep A in Jason’s bloodstream. Jason developed a rare complication from his infection of severely increased intracranial pressure. This led to constant excruciating head pain and double vision. He was at significant […]
Beyond Diagnoses: Gaby’s Story
When Gaby was four years old, her family noticed that she was barely talking, was frequently losing her balance, and experiencing severe migraines. After going through many tests, including a sleep study, they found out that she had Chiari malformation. As Gaby continued to grow, her doctors uncovered more diagnoses including scoliosis, postural orthostatic tachycardia syndrome (POTS), Tethered Cord, Syringomyelia, secondary Hydrocephalus PTSD, among many others. Gaby was seeing a plethora of doctors and undergoing several different therapies, surgeries, and medications. However, her family was having difficulty finding doctors that specialized in Gaby’s conditions in Tampa. After doing some research, Gaby’s mom, Diana, found Nemours Children’s Hospital, Florida. Their first visit at Nemours Children’s was with the neurology team in Orlando when Gaby was about nine years old. “As a parent who has dealt with so many doctors, I have experienced doctors who don’t even know how to pronounce her […]
World MS Day: Kalianne’s Story
At the young age of 15, Kalianne never expected to receive the challenging diagnosis of multiple sclerosis. Overnight, her world changed. When Kalianne woke up sweating with chills and couldn’t feel the right side of her face or body, her dad immediately took her to the local ER. Kalianne was so nervous to be heading to the hospital, she got sick in the car on the way there. Once they arrived, Kalianne was whisked away for blood tests and a CT scan. After looking at her test results, the ER staff concluded that Kalianne was having severe headaches, which was causing the vomiting and other symptoms and then they sent her home. A few days had gone by, and Kalianne’s symptoms continued to worsen. She was experiencing numbness in her face and tongue, her limbs felt heavy, and she was losing the ability to write clearly. After researching her symptoms […]
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