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Guest Contributors

‘I’m sorry, but I don’t think he’s going to make it.’

‘I’m sorry, but I don’t think he’s going to make it.’: Brody’s Story

As originally posted on “Love What Matters,” written and submitted by mom, Marcella Stanley “‘I’m sorry, but I don’t think he’s going to make it.’ My husband and I sat flabbergasted, the tears instantly streaming while I struggled to breathe. A room filled with nearly a dozen people stared awkwardly at us as we faced every parent’s worst nightmare. This was not how this day was supposed to go. We found out exactly four weeks prior, at our 20-week ultrasound, that our baby boy had a form of dwarfism. The initial concern was that it was a lethal condition, due to the severity of his skeletal abnormalities and how early they presented in the pregnancy. However, my amazing local OB and maternal fetal medicine physicians researched, and after painstakingly detailed ultrasounds, determined our son likely had a non-lethal skeletal dysplasia. His limbs were awfully short, but his chest was average […]

After 27 Years With Type 1 Diabetes, Here’s What I’ve Learned | Promise, powered by Nemours Children's Health System

After 27 Years With Type 1 Diabetes, Here’s What I’ve Learned

I celebrated my first National Diabetes Awareness Month in 1990. I was twelve years old, had just started seventh grade, and was very aware of Type 1 diabetes – I’d just been diagnosed with it. Aside from the distinctive smells of insulin and alcohol swabs, I don’t remember much about the time I spent in the hospital after my diagnosis, or about those first few months at home. I do, however, remember the sense of bewilderment that accompanied my family home from the hospital, and how uncertain we were about how our lives would proceed with a chronic condition to manage. If I could go back to that November, there’s so much I would tell my younger self about the reality of living with diabetes. Unfortunately, I can’t – so I’m sharing what I’ve learned here. Don’t panic. It’s true that diabetes can (and will) infiltrate every part of your […]

An Open Letter to Nemours Physicians on Doctor’s Day

Dear Nemours Physician, THANK YOU! As our nation celebrates Doctor’s Day 2016, I am both honored and delighted to have the opportunity to celebrate each of you. Thank you for all that you do for the thousands of children and families who rely on you and Nemours for both hope and healing. It is more than fitting that this annual recognition celebrates the dedication and compassion of physicians in caring for their patients and alleviating human suffering. Fitting, because compassion and alleviating human suffering are the very foundation upon which our benefactor, Alfred I. duPont, envisioned what we know today as the Nemours Children’s Health System. Doctor’s Day is also a time to recognize our physicians for their contributions to the body of medical knowledge and the creation of tools necessary to win the unending battle against disease that leads to better outcomes for patients. Yet, beyond the wonder of […]

Welcome to Promise

At Nemours Children’s Health System, we’re always looking for new ways to improve the well-being of all children and families, not just the ones we see in our clinics and hospitals. So, we’ve focused on building a conversation with parents throughout the country, to address the common (and not-so-common) health issues that so many of us face. We decided to do what any forward-thinking children’s health system would: we built a blog. Here, you’ll find wisdom, understanding and practical advice from our physicians and care teams. It’s all meant to address your everyday questions, and provide answers you can be confident in. We welcome your input, feedback and discussion, as well. It’s all part of what we’re here for. Get to know our doctors, browse a list of topics, and stop back often. We’ll post new insights on your child’s health every week. You may not always be able to call […]

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