POSTED BY:
Guest Contributor

At the age of 13, Zoe received a diagnosis of scoliosis during a routine check-up at her primary care physician’s office. A noticeable hump in her shoulder raised concerns, prompting a referral to Nemours Children’s Health at Lakeland Regional Health. There, X-rays revealed severe scoliosis. The results were sent to Dr. Joseph Khoury‘s office, and an appointment with him was quickly scheduled. Before receiving treatment at Nemours, Zoe’s scoliosis had a great impact on her life. It affected her self-esteem, as the curve in her back and waist made her feel uncomfortable in her own skin. She expressed that her clothes didn’t fit right, and she often experienced discomfort while sleeping. The path to Nemours for Zoe and her family was driven by both trust and research. Zoe’s primary care physician recommended Dr. Khoury, who was known for his successful treatments of scoliosis. Furthermore, a family friend who worked at […]

You may have seen in the news recently—in stories airing on NBC, and published in The Philadelphia Inquirer[PA1]  and USA Today—, the extraordinary study conducted by researchers at Nemours Children’s Hospital, Delaware. The study revealed that at least 10 babies have what doctors believe to be a new syndrome related to exposure to fentanyl in the womb. Erin Wadman, LCGC, Karen Gripp, MD, and Erica Fernandes, DO, along with their colleagues, published their findings in Genetics in Medicine Open. Get to know the women behind this groundbreaking research here:  What inspired you to pursue this research study? Wadman: The opportunity presented itself to me from working in outpatient genetics and the Cleft and Craniofacial clinic. I was noticing a pattern of patients who had similar physical differences but who also had no genetic diagnosis on genetic testing. All these patients had significant exposures to fentanyl during the pregnancy. From there, we knew we were on […]

Join Ryan’s inspiring journey through epilepsy and Tuberous Sclerosis Complex, as his mother shares about navigating uncertainties, embracing therapies, and finding strength in the support of Nemours Children’s Hospital.

Follow Kaden’s inspiring journey through Burkitt’s Lymphoma, from a devastating diagnosis to overcoming challenges with chemotherapy, lumbar punctures, and the unwavering support of family and Nemours Children’s Hospital.

Since 2018, Nemours Children’s Health has been funded by the Centers for Disease Control and Prevention (CDC) to help states create healthier early care and education (ECE) programs and state systems through the Healthy Kids, Healthy Future Technical Assistance Program (HKHF TAP). Throughout the five years and guided by the CDC’s Spectrum of Opportunities, Nemours Children’s engaged with 37 states and the District of Columbia through various programs to build capacity to improve nutrition and physical activity in ECE. Of those, Nemours Children’s partnered closely with 13 states to integrate healthy eating and physical activity best practices, such as opportunities for daily physical activity both indoors and outdoors into ECE program settings and broader state systems. State ECE systems include TA networks, professional development, licensing, Quality Rating and Improvement Systems (QRIS), and more.  We celebrate the incredible work achieved by our partners over the past five years and are grateful […]

At Marcella’s 20-week ultrasound, she learned that her unborn child, Brody, had skeletal dysplasia. This news caused a whirlwind of emotions, but little did she know that this journey would lead her to the incredible team at Nemours Children’s Hospital, Delaware, setting them on a path of resilience and discovery. With this news, Marcella dove into gathering information to understand the unique challenges that Brody might face. Although they lived in Wichita, KS, her research led her to the Nemours Children’s Orthopedics team. Brody’s first appointment at Nemours didn’t come until six months, although Marcella was in touch with the skeletal dysplasia team shortly after he was born. She connected with Colleen Ditro, DNP, CPNP who would become an integral part of Brody’s journey. As Brody came into the world, so did a definitive diagnosis of diastrophic dysplasia, a rare genetic condition that causes dwarfism. Their local NICU was ill-equipped to […]