Guest Contributor, Author at Nemours Blog - Page 11 of 28

POSTED BY:
Guest Contributor

Meet the Resident: Haleigh McCahon

Meet Haleigh McCahon, a second-year pediatrics resident at Nemours Children’s Hospital, whose passion for pediatrics was ignited during a heartwarming experience in medical school.

La Trayectoria de Ashley con Microtia

Sigue la trayectoria de Ashley Garcia, una niña de 10 años que supera la microtia con cuidado personalizado en el hospital infantil de Nemours en Delaware.

Ashley’s Microtia Journey

Follow the inspiring journey of 10-year-old Ashley Garcia, who triumphs over microtia with personalized care at Nemours Children’s Hospital, Delaware.

Innovation in Pediatric Care: Meghan’s Story

Meghan’s journey with Bladder Neck Dysfunction unfolded over the course of several years, involving many visits to urologists. It was only when she sought the expertise of Dr. Hagerty, making the journey all the way from Rhode Island to Nemours Children’s Hospital, Delaware, that a diagnosis was finally made. Before treatment at Nemours Children’s, bladder issues had caused many complications throughout Meghan’s life. Pain, discomfort, urinary retention, and bladder spasms were constant obstacles, making it difficult for her to attend school and participate in social activities. Her condition had become a barrier to living her teenage life. However, Nemours proved to be a place of hope for Meghan and her family. The kindness and compassion given by every staff member, from the front desk to the medical professionals, left a lasting impression. So much so that Meghan even suggested relocating to Delaware upon leaving the hospital – a testament to […]

Reclaiming Confidence: Zoe’s Story

At the age of 13, Zoe received a diagnosis of scoliosis during a routine check-up at her primary care physician’s office. A noticeable hump in her shoulder raised concerns, prompting a referral to Nemours Children’s Health at Lakeland Regional Health. There, X-rays revealed severe scoliosis. The results were sent to Dr. Joseph Khoury‘s office, and an appointment with him was quickly scheduled. Before receiving treatment at Nemours, Zoe’s scoliosis had a great impact on her life. It affected her self-esteem, as the curve in her back and waist made her feel uncomfortable in her own skin. She expressed that her clothes didn’t fit right, and she often experienced discomfort while sleeping. The path to Nemours for Zoe and her family was driven by both trust and research. Zoe’s primary care physician recommended Dr. Khoury, who was known for his successful treatments of scoliosis. Furthermore, a family friend who worked at […]

The Pioneering Women Behind Fentanyl-Related Syndrome Discovery

You may have seen in the news recently—in stories airing on NBC, and published in The Philadelphia Inquirer[PA1]  and USA Today—, the extraordinary study conducted by researchers at Nemours Children’s Hospital, Delaware. The study revealed that at least 10 babies have what doctors believe to be a new syndrome related to exposure to fentanyl in the womb. Erin Wadman, LCGC, Karen Gripp, MD, and Erica Fernandes, DO, along with their colleagues, published their findings in Genetics in Medicine Open. Get to know the women behind this groundbreaking research here:  What inspired you to pursue this research study? Wadman: The opportunity presented itself to me from working in outpatient genetics and the Cleft and Craniofacial clinic. I was noticing a pattern of patients who had similar physical differences but who also had no genetic diagnosis on genetic testing. All these patients had significant exposures to fentanyl during the pregnancy. From there, we knew we were on […]

Nemours Children’s Health Celebrates Five Years of the Healthy Kids, Healthy Future Technical Assistance Program  

Since 2018, Nemours Children’s Health has been funded by the Centers for Disease Control and Prevention (CDC) to help states create healthier early care and education (ECE) programs and state systems through the Healthy Kids, Healthy Future Technical Assistance Program (HKHF TAP). Throughout the five years and guided by the CDC’s Spectrum of Opportunities, Nemours Children’s engaged with 37 states and the District of Columbia through various programs to build capacity to improve nutrition and physical activity in ECE. Of those, Nemours Children’s partnered closely with 13 states to integrate healthy eating and physical activity best practices, such as opportunities for daily physical activity both indoors and outdoors into ECE program settings and broader state systems. State ECE systems include TA networks, professional development, licensing, Quality Rating and Improvement Systems (QRIS), and more.  We celebrate the incredible work achieved by our partners over the past five years and are grateful […]

Beyond Expectations: Brody’s Diastrophic Dysplasia

At Marcella’s 20-week ultrasound, she learned that her unborn child, Brody, had skeletal dysplasia. This news caused a whirlwind of emotions, but little did she know that this journey would lead her to the incredible team at Nemours Children’s Hospital, Delaware, setting them on a path of resilience and discovery. With this news, Marcella dove into gathering information to understand the unique challenges that Brody might face. Although they lived in Wichita, KS, her research led her to the Nemours Children’s Orthopedics team. Brody’s first appointment at Nemours didn’t come until six months, although Marcella was in touch with the skeletal dysplasia team shortly after he was born. She connected with Colleen Ditro, DNP, CPNP who would become an integral part of Brody’s journey. As Brody came into the world, so did a definitive diagnosis of diastrophic dysplasia, a rare genetic condition that causes dwarfism. Their local NICU was ill-equipped to […]

A World of Difference: Sawyer’s Story

In 2023, Stephanie, a mom and homeschool teacher from Virginia, found herself expecting her fourth child. Little did she know, this journey would lead her family to Nemours Children’s Health, bringing them expert care for her newborn son, Sawyer, who was diagnosed with osteogenesis imperfecta (OI) a condition that affects bone strength. In someone with OI, bones may break (fracture) easily, resulting from minor trauma or no clear cause. Before Sawyer’s arrival, Chris and Stephanie’s life felt complete with their three children: Cassie, Evan, and Eli. While unexpected, the news of a new addition to the family was quickly met with surprise and excitement. The entire family eagerly prepared for their newest member’s arrival. On a whim, Stephanie decided to take advantage of an extra ultrasound through a free service that was offered at her Pregnancy Resource Center. She wanted her other children to be involved and thought this was […]

From Immobility to Independence: Yanex’s Story

Yanex’s story began at just nine months old, when his primary care physician noticed something amiss. Keyshla, his mother, recalls that during a routine check-up, she expressed concerns about Yanex’s lack of developmental progress. He wasn’t attempting to sit or crawl, and his movements were limited to lifting his head when placed face down. However, it was Yanex’s head shape that raised the most concern for his doctor. During this check-up, Yanex’s physician ordered an X-ray. That day, the report arrived with a diagnosis of craniosynostosis. Craniosynostosis, a problem where one or more seams between bones in a child’s skull closes too soon, had a significant impact on Yanex’s life prior to treatment. “Yanex only looked comfortable when he was in the car seat, stroller, swing or while being held,” says Keyshla. “He was also exclusively breastfeeding for over a year. Yanex was not independent in the slightest, as if […]

Page 11 of 28

Page 11 of 28

Page 11 of 28