Jessica, 12-year-old Billy’s mother, recalls the summer of 2022 when they noticed something unusual during their family getaway. “While on vacation, we discovered he had an anal fistula,” she recounts. In April of the following year, Billy experienced his first flare-up, ultimately leading to a diagnosis of Crohn’s disease.
Located in their hometown, Nemours Children’s Hospital, Florida became a regular visit for Jessica and Billy. “We have lived in Lake Nona for over 11 years,” says Jessica, so they were already familiar with the Nemours Children’s location. From the moment they stepped through the doors, they were greeted by a team of dedicated professionals led by gastroenterologist Dr. Pablo Palomo.
Reflecting on their experiences with the Nemours team, Jessica highlights the genuine care and compassion in each interaction. “Billy’s liked everyone he’s ever interacted with,” says Jessica. “My favorite thing about them is how special they make me feel, even when I’m at my worst,” says Billy.
As they look towards the future, Billy’s optimism shines through. “I feel good and happy to actually feel normal and grow,” he shares, a testament to the progress he’s made. With aspirations of becoming a GI doctor himself, Billy has big dreams for his future. “I hope to stay in remission for as long as possible,” says Billy, highlighting his unwavering determination.
When asked about advice for those treading a similar path, Jessica says, “You are not alone. If you feel like it won’t get better, it will.” She encourages others to embrace the power of knowledge when it comes to your child’s medical journey. “Do lots of research and educate yourself as much as you can about the disease,” she advises. “It helps a lot to understand so much more about Crohn’s.”
As Billy and Jessica navigate Billy’s future with Crohn’s disease, they will continue to have Nemours Children’s and Dr. Palomo by their side.
