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ASSOCIATE HIGHLIGHT

Associate Highlight: Erin Taylor

Erin’s path in healthcare began as an EMT and Paramedic working for a fire department. However, she had big dreams of becoming a flight RN one day. “While completing school for nursing, I had the opportunity to work as a civilian combat medic in Afghanistan where I was able to provide aid to our soldiers and fly,” shares Erin. “From there, I was able to get a job at Nemours Children’s Hospital, Florida as a Paramedic in the Clinical Logistics Center until I received my RN license. I then began working in the RN resource pool, allowing me to get experience in all units of the hospital. I developed a passion for pediatric and neonatal cardiac and used that strength and experience to allow me to join the Nemours Transport Team.” Through hard work and determination, Erin found her home at Nemours on the Critical Care and Transport Team where […]

PATIENT STORIES

Navigating HLH with Hope: Madison’s Story

Madison’s journey with Hemophagocytic Lymphohistiocytosis (HLH) began at 2 months old. A severe ear infection spiraled into Mastoiditis, leading to urgent surgery and a slew of testing. It was a challenging time for her mother, Jeannine, and their family. They grappled with the possibility of HLH, a blood and immune system disorder that had already touched their lives through Madison’s brother. Jeannine recounts, “Madison’s condition was weighing heavy on our minds that she could have HLH like her brother did.” Having sought care for her son at Nemours Children’s Hospital, Delaware, Jeannine turned to the hospital once again, entrusting them with Madison’s care. “We have always felt the doctors and therapists have cared for and loved us truly from their heart,” says Jeannine. “We went to larger hospitals and felt like we were a number there, but not at Nemours.” Madison’s treatment at Nemours Children’s primarily involves outpatient therapy services. […]

PATIENT STORIES

Living Life to the Fullest: Carly’s Journey with Morquio Type A

For Carly, the journey to a Morquio Type A diagnosis began with uncertainty. As a young child, there were signs that something wasn’t quite right, and her parents embarked on a quest for answers. After a lot of testing and a few misdiagnoses, it wasn’t until Carly was around a year and a half old that a local doctor stumbled upon a small paragraph in a textbook about Morquio Type A, setting the stage for a lifelong medical journey. When her physician, Dr. Kopis from St. Jose Hospital, could no longer practice, Carly’s journey led her to the care of Dr. William Mackenzie at Nemours Children’s Hospital, Delaware. With expertise in skeletal dysplasia, Nemours Children’s was the perfect fit for Carly, offering specialized care tailored to her needs. “From the beginning, my parents loved the care I received at Nemours,” says Carly. “My mom immediately transitioned all of my doctors to […]

PATIENT STORIES

The Power of Community at Nemours Children’s Health

Laura, Jess, Ginny, and Jasmine are remarkable mothers whose paths crossed through their children’s diagnoses. Through shared experiences and care teams, this group of women have formed lasting friendships. Their children, Charlette, Noah, Gino, and Jeremiah, share the diagnosis of osteogenesis imperfecta (OI) and receive compassionate care from the exceptional team at Nemours Children’s Hospital, Delaware. Under the guidance of dedicated clinicians such as Dr. Ricki Carroll, Dr. Jeanne Franzone, Tina McGreal, APRN, Licensed Genetic Counselor Andrea Schelhaas, Sarah Little, PA-C, Katie Harp, LCSW, and many more, these children are thriving in a nurturing environment full of hope. United by a common journey, Laura, Jess, Ginny, and Jasmine were introduced to each other via an online group for parents of children with OI. Through these Facebook groups dedicated to OI, they discovered a community where fears were conquered, victories celebrated, and wisdom exchanged. Laura recalls the moment when she first […]

PATIENT STORIES

Osteogenesis Imperfecta Awareness Week: Mackenzie’s Story

In the world of healthcare, finding a place that feels like home can be a challenge. For Amanda, mother of 4-year-old Mackenzie, that home is Nemours Children’s Hospital, Delaware. Mackenzie’s journey with osteogenesis imperfecta (OI) began even before she took her first breath. At just 25 weeks, Amanda learned of her daughter’s diagnosis. “I went for a routine anatomy scan while pregnant. Significant bowing in Mackenzie’s legs and long limb measurements indicated that she would need more testing. I received an amnio and was sent to another hospital where she was diagnosed,” Amanda recalls. Transitioning Mackenzie’s care to Nemours Children’s was a pivotal moment for their family. They discovered the facility after finding recommendations on social media. “We are part of a group on Facebook for parents of children with OI,” says Amanda. “I was asking questions when Mackenzie broke her arm at 10 days old and someone recommended we […]

PATIENT STORIES

Compassionate Care: Cruz’s Story

“At the 20-week ultrasound, I learned about his skeletal dysplasia,” Brittany recalls. “And at the 33-week Vistara blood test, I learned about his OI diagnosis.” These moments marked the beginning of Cruz’s journey, but they also sparked Brittany’s search for the best care possible for her son. It was during her 35th week of pregnancy that Brittany discovered the Advanced Delivery Program (ADP) at Nemours Children’s Hospital, Delaware, thanks to a recommendation on the Osteogenesis Imperfecta Community Facebook page. “Their care, communication, and knowledge gave us extreme confidence in the ADP Team,” says Brittany. “They had a plan, relayed it to us, listened to our concerns, and had experience delivering OI babies.” The support Brittany received from the medical staff at Nemours Children’s during the delivery process was nothing short of extraordinary. “They showed compassion during every step,” Brittany emphasizes. “They helped keep me calm by talking about my 2-year-old […]

PATIENT STORIES

From Pitch to Progress: Jarnum’s Story

In the world of sports, injuries are often seen as setbacks, hurdles that athletes must overcome to get back to doing what they love. For Jarnum, a 15-year-old elite soccer player, a left knee lateral meniscus tear threatened to impact his game. Jarnum is the youngest player in a semi-professional USL2 academy league for Swan City Soccer Club in Lakeland. He holds the distinction of being the youngest player ever to score a goal in the USL2, helping his team secure their sole victory of the season. Unfortunately, it was during his time with this team that Jarnum sustained his injury. While engaged in a defensive play, he collided with another player, resulting in the tear to his left knee. Jarnum’s mother, Authrine, recalls the moment when their journey with Nemours began. “Dr. Julia Fink could tell that it was a meniscus tear right away,” she says. “But she wanted […]

FEATURED POST

From Patient to Pre-Med: Maddie’s Story

At 13 years old, Maddie Walsh was diagnosed with melanoma. This unexpected turn led her to Nemours Children’s Hospital, Florida, where she found a supportive community that became like family. Maddie’s journey began with the discovery of a change in a mole she had since childhood. A dermatologist family member recognized the signs and urged her to seek medical attention. Following a biopsy and consultations with various pathologists, Maddie received the diagnosis of malignant melanoma from Chief of the Division of Plastic and Craniofacial Surgery, Dr. Brian Kellogg. “I was 13 when I first heard I was going to see a plastic surgeon. I was very confused because I only knew them by the stereotypes on TV,” says Maddie. “However, I quickly learned that was far from what Dr. Kellogg and his team does. When I first heard the word ‘cancer,’ my mind jumped to the worst. I was terrified. […]

Page 8 of 16

Page 8 of 16

Page 8 of 16