Nemours Children’s Health patients Naheim Smith and Reign Jefferson were both diagnosed with sickle cell disease at a young age. Thanks to treatment at Nemours, Naheim has been cured of sickle cell disease, and Reign is now better able to manage the disease and is thriving. On June 11 and 12, Naheim and Reign joined the National Office’s Federal Affairs team on Capitol Hill, along with Dr. Stephanie Guarino, a hematologist/oncologist at Nemours Children’s Hospital, Delaware, as a part of the Children’s Hospital Association’s annual Family Advocacy Day. Naheim’s and Nevaeh’s Story Naheim was diagnosed with sickle cell disease when he was under a year old. During his early childhood, he experienced pain crises and strokes, which led to many hospital visits at Nemours Children’s Hospital, Delaware. After one stroke, his doctors discovered he had Moyamoya disease – a rare disorder caused by blocked arteries at the base of the […]
