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Chronic or Serious Conditions

How did two children’s healthcare organizations in Jacksonville, Florida care for kids 7,000 miles away? Jonathan Soud was a 12-year-old patient at Wolfson Children’s Hospital and Nemours Children’s Health, Jacksonville, being treated for leukemia. During his treatments, his doctors and family spent a lot of time talking to him about his interests in travel and other cultures, especially the country of Mongolia. Eric Sandler, MD, is a pediatric hematologist/oncologist at Wolfson Children’s Hospital and chair of the department of pediatrics at Nemours Children’s Health, Jacksonville. He developed a special bond with Jonathan during treatments, sharing his own fascination with distant lands. Dr. Sandler also discovered that Jonathan had an interest in serving others. “After he passed away, his parents came to me and said they wanted to figure out a way to honor Jonathan’s memory,” said Dr. Sandler. “Since we had had all those conversations regarding Mongolia, his family decided to […]

For parents whose children live with an allergy to peanuts or tree nuts, avoiding the ingredients can become a matter of cautious routine. It’s never easy, but parents grow accustomed to avoiding certain foods and contaminants, watching for symptoms, and carrying the necessary supplies in case of an accidental exposure. But what about friends, friends’ parents, or other family members? It can be hard to give a simple overview of the dangers and limitations that come with a peanut or tree nut allergy – especially when you’re trying to allow your child to live a life that’s as close to normal as possible. Here’s what friends and family members should know about caring for or spending time with a child who has a nut allergy – whether it’s a sleepover, family vacation, or a babysitting gig. It’s a real thing. No matter what your own experiences with peanut or tree nut […]

When your child complains of chest pain, it’s natural to jump to heart-related conclusions. But most cases of chest pain in children aren’t caused by cardiac conditions. It can sometimes be hard to get a clear description of your child’s chest pain, but symptoms usually include: Tightness. Discomfort. Burning sensation. Pain when taking deep breaths. Coughing. Wheezing. So what should you do? Make an appointment with your child’s primary care physician, and keep in mind that chest pain in children is usually not heart-related. Chest pain can often be attributed to one or more of the following: Gastroesophogeal reflux disease, or ongoing heartburn Pain or inflammation in the chest wall Asthma Pneumonia Stress or anxiety Injury Viral illness Heading to the hospital is absolutely necessary in some situations. Seek emergency care if: Exercise brings about chest pain, or makes it worse. Chest pain occurs with rapid or irregular heartbeat. Fainting or […]

This blog post is written by Larry, the father of Maddie, a medulloblastoma patient who survived a brain tumor at the age of 2. Larry inspires us by sharing his daughter’s story. “Heroism is endurance for one moment more.”      George F. Kennan In the fall of 2008, at the age of two, our daughter Maddie was diagnosed with medulloblastoma, a brain tumor that arises at the base of the brain and often spreads down through the spine via the spinal fluid. Over the course of the next ten months, Maddie underwent multiple brain and spine surgeries and intense chemotherapy protocols at Nemours/Alfred I. duPont Hospital for Children. After six cycles of chemo treatment, she had made amazing progress, knocking out 90% of her original disease. Because her scans were not completely cancer-free, she then went through an additional six weeks of radiation therapy. Conquering Cancer The effects of radiation on a 3-year-old can […]

When Erin Pitts faced spinal surgery as a teen, she never imagined it would impact her life in other ways. Diagnosed with scoliosis at a young age, initially the care plan for the Jacksonville, Fla., resident was to pursue a non-surgical approach to correct the curves in her spine using a back brace. When her complex scoliosis proved resistant to treatment, however, surgery became the best option for long-term results. The experience ended up changing not only her health, but also her career trajectory. Pitts first learned of her condition in the sixth grade, when she began experiencing intense lower back pain. As her condition gradually began limiting her daily activities, her mom made an appointment with her pediatrician. He referred her to Nemours for an orthopedic assessment, where she became a patient of Eric Loveless, MD, department chair of orthopedics at Nemours and a board-certified pediatric surgeon who performs […]

Because of the COVID pandemic, you may be putting off visits to your child’s pediatrician. But a missed well visit could mean missing a scoliosis screening. What is scoliosis? Scoliosis is an S-shaped curve in the spine.  It is a condition that occurs equally in boys and girls; however, the curve tends to increase more often in girls. Small curves usually don’t cause problems. But large curves can cause health problems like pain or trouble breathing. What causes scoliosis? The most common form of scoliosis is idiopathic which means “cause unknown.” Kids of any age — even infants — can have idiopathic scoliosis. But it’s usually found when a child begins going through puberty. How do you know your child might have scoliosis? Most often, parents, pediatricians or school nurses may notice one or more of the following signs of scoliosis: One shoulder blade more prominent Ribcage is shifted to one […]