Posted in Celebrations

This post was written by Anthony’s mom, Debbie.  “Something was Different” Anthony was about six months old when I…

This year marked the fourth time that patients and families gathered to share stories, common concerns, and inspiration at…

Rare diseases are medical conditions that affect a low proportion of the general population. Although the incidence of rare…

When Jill’s third child, Emmy, was born with a hole in her heart, Jill wasn’t too worried. Her two…

The holidays are supposed to be the most wonderful time of the year, but for many of us, they…

The hustle and bustle of the holidays is fully upon us. The family gatherings, the dinner parties, the shopping,…